Society for Participatory Medicine
e-patients.net blog
health
found on the net
Nancy Finn interview on Fox News
Nancy has quite a publicist for her book “e-Patients Live Longer,” which is spreading the e-patient message… here’s an interview with FoxNews.com.
Read Moree-patient stories, general
Worst Headache of My Life Becomes Lesson About Role of Story in Health
This post and 5 minute video were published on ABC News yesterday and I want to share them with this community as well. Three months ago, at the age of 40, I had a small bleed in my brain. My story is no more special than any of your stories, but I learned something important [...]
Read Morepolicy issues, reforming hc
Healthcare Associated Infections: What’s an Infographic Got To Do With It?
The good people at GE and JESS3 have come up with an HAI infographic. It’s pretty, and it conveys the horrible information that many of us already know — healthcare associated infections kill about 100,000 people a year, and add $35 billion a year to our collective health care bill (here in the US of [...]
Read Morefound on the net, medical records, policy issues, positive patterns, reforming hc, trends & principles, Why PM
“The stage is being set for patient-driven disruption”
The e-Caremanagement blog has released my post that we mentioned last week: “Gimme my damn data!” The stage is being set to enable patient-driven disruptive innovation. It’s part 5 of their excellent series (really, excellent) “Is HITECH working?” As I said then, if you’re into health IT, please catch up on this series – their [...]
Read Moree-pts resources, positive patterns, trends & principles
The internet is changing healthcare – video from Reshape09
I wish I could have been at the Reshape2009 conference this month in the Netherlands. The Twitter buzz was stimulating, and the 6 minute opening video caused a lot of buzz. I didn’t get it all because it was in Dutch. Now, thanks to producer Lucien Engelen (@Zorg20, “Health 2.0″), here it is in English. [...]
Read Moremedical records, policy issues, pt/doc co-care, reforming hc, trends & principles
“Give us our data”:
my talk at the NeHC board meeting
Last Tuesday, June 2, I was on a consumer panel at a board meeting of the National eHealth Collaborative. This is a heady group to be addressing; as this press release says, nine of these people are on the advisory committees that are working directly with David Blumenthal, Obama’s National Coordinator for Health IT, to [...]
Read Morepatient networks
Online Patient Groups
Laura Landro’s column in the Wall Street Journal features a series of profiles of online patient groups like MPDinfo.org and ACOR.org, among others. Now seems like the right time to post some data that I’ve been holding back, waiting for the right opportunity to talk about it publicly.
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