health care

 

general, medical records, policy issues, pt/doc co-care, reforming hc, shared decision making

Just Say “No” to Medicare’s MACRA Tokenism

On social media and at meetings like Health Datapalooza, our favorite federal bureaucrats assure us of their commitment to open data and patient empowerment. But those are just soothing words; federal regulations are law. On April 30, I posted on e-patients.net an article entitled, “You Won’t Believe What Medicare Just Did on Patient Engagement!” In it, I showed how the long-awaited draft […]

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medical records, policy issues

You Won’t Believe What Medicare Just Did on Patient Engagement!

Quick summary for the impatient: Michael’s post urges public comment in the upcoming comment period, and ends with this: “If we in the patient community do not raise questions and objections to this critically important MACRA rule, you will definitely not believe what happens next.” – e-Patient Dave Sure, I’ve always wanted to write a clickbait […]

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Why I joined

Why I joined SPM – and why maybe you should!

Guest post by John Hoben, who joined our Society in 2014 and has been a major contributor to discussions on our member listserv. He recently joined our board of directors. He has a particularly great story – he actually met Doc Tom long ago! – and I asked him to capture it here for our […]

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general

2016: Opportunities and Challenges in Health Care

In 2016, mHealth technology will occupy center stage in transforming clinical care and clinical research.  Smartphone-linked wearable sensors will turn science fiction into reality as these mobile diagnostic tools provide the in depth information that enables    patients and clinicians to experience more accurate, continuous streams of information that will help them make better informed health […]

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general, hc's problem list, medical records, policy issues

Individuals’ Rights to Their Health Information: The Federales Awaken

A long time ago (in internet years), the original HIPAA regulations were promulgated. (The final Privacy Rule was published in 2000.) They’ve been tweaked and updated over the years, most notably in the “mega-reg” promulgated a few years  back in order to implement the updates included in the HITECH Act. For purposes of the present […]

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general

Alternative Choices for Healthcare: What are the Options?

I was at dinner with friends recently when I noticed that my right thumb was red, swollen and painful.  One of my friends is a biochemist and instructed me to immediately soak the finger in hot water.  I continued our social evening dipping my right thumb in and out of a cup of boiling water. […]

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reforming hc, trends & principles, Why PM

We’re all in this together

A guest post from member Jeffrey Halbstein-Harris – this is a small slice of a longer piece he used as the basis for a speaking engagement. This is a call to consumers: my brothers and sisters who rely on healthcare and its infrastructure’s support throughout their life. I was leaving a meeting of healthcare policy experts […]

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general

Happy Birthday Medicare, Medicaid and Social Security

On July 30, 2015, Medicare and Medicaid will celebrate their 50th birthday. In August of 2015 Social Security, celebrates its 80th birthday. Amendments to the Social Security Act (Title XIX) that established guaranteed basic health coverage programs for all elderly, low-income adults and children, pregnant women, and people with disabilities were signed into law on […]

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e-pts resources, Patient Conference Participation, pts as teachers, reforming hc, trends & principles

Conference Organizers to Affected Patients: “Go Fund Yourself”!

SPM member MaryAnne Sterling is Co-founder of tech startup Connected Health Resources – she’s a healthcare transformer and person-centered care activist whose motto is: no family caregiver left behind. A recent experience, what she calls her “go fund yourself” moment, is captured in this guest post. During the Holidays, I carry on a time-honored tradition in my family: […]

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general, reforming hc

No Rhyme or Reason

We have read and heard a lot about the disparities in the cost of care from one hospital or clinic to another. We have read and heard a lot of grumbling about the uneven availability of health care services in this country. Many of us have been outraged to learn that Pharma companies can charge […]

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