Society for Participatory Medicine
e-patients.net blog
Health Care System
general, key people, medical records, policy issues, reforming hc
Society for Participatory Medicine Comments on ONC Federal Health IT Strategic Plan 2011-2015
We e-patients are an impatient lot, and therefore we may not be big fans of the Five-Year Plan approach to creating change. The Office of the National Coordinator for Health IT released a draft federal health IT strategic plan in late March, via blog post (the plan itself is linked to from the post; a [...]
Read Morematernity, research issues
Are consumers at the bottom of the evidence pyramid?
We’re pleased to present another guest post by Amy Romano, which first appeared on the phenomenal maternity blog Science and Sensibility. See also her newest post, last night, here – including a terrific BlogTalkRadio interview in which she expresses herself on the virtues of Participatory Medicine. I have argued (here and here on e-patients.net, and [...]
Read Moregeneral
2010: The Year of Open Streams & Fax Machines
I started writing this post while watching a livestream of the LeWeb09 conference in Paris and finished it while watching a livestream of TEDxSV. Open Streams are of many kinds and shapes. They are completely changing how we consume information, news & entertainment. .. It could be a joke and it could be funny! Instead, it [...]
Read Morematernity, positive patterns, pt/doc co-care, trends & principles, Why PM
A Lifetime of Participatory Medicine Can Start With Maternity Care
As promised yesterday, here is Amy Romano’s guest post for our series leading up to the Oct. 21 launch of the Journal of Participatory Medicine. Amy is a nurse-midwife and advocate for mother-friendly maternity care. An expert in research analysis, she manages the Science & Sensibility blog for Lamaze International. Follow her on Twitter: @MidwifeAmy. If [...]
Read Morepositive patterns, pt/doc co-care, trends & principles, Why PM
Keep an eye out for tomorrow morning’s post
In our “Why Participatory Medicine” series, leading up to the October 21 launch of the Journal of Participatory Medicine, tomorrow’s guest post will be a special treat for me. It contains a breakthrough insight about participatory medicine, and it’s a perfect example of how social media is enabling a wildfire acceleration of the spread of [...]
Read Moregeneral
Guest post on The Ideal Doctor/Patient Relationship (Kent Bottles, MD)
Guest post by Kent Bottles, M.D., President of ICSI. Preface: The Institute for Clinical Systems Improvement is a Minnesota-based non-profit that “brings together diverse groups to transform the health care system so that it delivers patient-centered and value-driven care.” Needless to say, I like how they think. (Good taste, too – they invited me to [...]
Read Morepolicy issues, reforming hc, trends & principles, understanding statistics
I’m sick of hearing Washington talk about savings “over ten years”
I am sick of hearing politicians and money-making parties talk about savings projections “over ten years.” It’s STUPID. We’re stupid if we listen. Nothing (and I mean nothing) happens as projected ten years ago, not even five. It’s fiction; it’s a bogus way to inflate modest figures. This is the same issue as e-patients understanding [...]
Read Moregeneral
US Health Care Reform: A Contemporary Example of
Goodhart’s Law?
Goodhart’s law – named after a former chief economist of the Bank of England – says that whatever social or economic indicator or other surrogate measure you adopt as a financial target ceases to be a relevant target once you have adopted it because it loses the information content it had originally. What is the [...]
Read Moregeneral
In Iran and in the US Health Care System,
Citizens’ Access to Computable Data
Frees Everything!
Dedication: This post is dedicated to Regina Holliday and to the memory of her husband, Frederick Allen Holliday, who passed away on June 17. Regina’s story has energized many of us to create the Declaration of Health Data Rights we are asking you to endorse on a website or via twitter. Definition: Data in a [...]
Read Morept/doc co-care
Participatory Medicine: Blending Traditional Medicine with “Health 2.0″
Tom Davenport, in a Harvard Business Publishing Blog post, does a nice job of discussing the merging of “Health 2.0″, the aggregate of online communities, wiki’s, bloggers, and tweets, with the role of traditional medical providers. He asks whether, if you get seriously ill, you will rely solely on colleagues online or whether you’ll seek out a [...]
Read More
