Health Data Rights

general, key people, policy issues, pt/doc co-care, reforming hc, trends & principles

Lab Results for All! Of Data Liberation, Participatory Medicine, and Government 2.0

David Harlow | September 30, 2011

On September 14, HHS released for comment draft lab results regulations that will, if finalized, effectively bathe the Achilles’ heel of health data in the River Styx of ¡data liberación! Lab results will be made available to patients, just like all other health data. (See the HHS presser and YouTube video from the consumer health [...]

Participatory Medicine at PdF09: Can we get a do-over?

Susannah Fox | July 8, 2009

The poli-tech tribe gathered in New York last week for the Personal Democracy Forum and, as Craig Newmark put it, welcomed “our new nerd overlords.” Esther Dyson, Jamie Heywood, Rep. Jerry Nadler (D-NY), and I were asked to take on a breakout panel entitled, “From Participatory Politics to Participatory Medicine: The Coming Revolution in Health [...]