Society for Participatory Medicine
e-patients.net blog
Health Information Technology
general, key people, medical records, policy issues, reforming hc
Society for Participatory Medicine Comments on ONC Federal Health IT Strategic Plan 2011-2015
We e-patients are an impatient lot, and therefore we may not be big fans of the Five-Year Plan approach to creating change. The Office of the National Coordinator for Health IT released a draft federal health IT strategic plan in late March, via blog post (the plan itself is linked to from the post; a [...]
Read Moremedical records, policy issues, reforming hc, Why PM
Insights on how the HITECH stimulus plan is working
In my previous post I noted that Vince Kuraitis and David Kibbe are running an excellent series, “Is HITECH Working?”* After a full year of increasing tensions, claims, and counterclaims, reading these posts has given me hope that it’s all panned out into something mortals can understand. (I’d been afraid to look!) In a day [...]
Read Morematernity, positive patterns, trends & principles
Low-Tech Models of Participatory Medicine: The Astounding Results of Group Prenatal Care
A signal moment in the history of this blog was the arrival in late summer of a new ally, the birthing movement, represented by Amy Romano, the blogger at Science and Sensibility, the Lamaze International blog. Amy gets it: participatory medicine is not just about the internet – it’s about being empowered and engaged. Her [...]
Read Moremedical records, policy issues, reforming hc
Health IT Policy: E-patients want access
What would you say to policymakers who are discussing the implementation of a national health information infrastructure? Here’s what I’d say: E-patients want access to tools and information. Many will find what they need, many will not. You can help.
Read Morepolicy issues
HIPAA’s Broken Promise
If you hate HIPAA, it’s your lucky day. Paul Ohm is handing you ammunition in his article, “Broken Promises of Privacy: Responding to the Surprising Failure of Anonymization.” His argument: our current information privacy structure is a house built on sand. “Computer scientists…have demonstrated they can often ‘reidentify’ or ‘deanonymize’ individuals hidden in anonymized data [...]
Read Moregeneral
Question For President Obama
Guest Post: Cindy Throop from http://Open-Health.us, a participatory forum dedicated to effectively including patients in the discussion, planning, and evaluation of health care reform. A lot of money is about to be invested in health care, particularly into health information technology (HIT). Does this mean that when your health care provider(s) implement electronic medical records, [...]
Read Moreethics, general, hc's problem list, medical records, news & gossip, policy issues
Dossia, Microsoft HealthVault & Google Health:
Illegal in NJ?
In the last few days the announcement of a proposed NJ state law has made the Internet rounds. “· On or after January 1, 2011, no person or entity is permitted to sell, offer for sale, give, furnish, or otherwise distribute to any person or entity in this State a health information technology product that [...]
Read Morefound on the net
Patients first. Doctors second.
An Op-Ed piece at the healthcare blog, written by 2 MDs from Harvard Medical School is pretty clear! For those of us who believe the time has come for participatory medicine, the following quote is particularly interesting: Empowering patients should be the first step in transforming American healthcare. The central question that policy makers should [...]
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