Society for Participatory Medicine
e-patients.net blog
Health Reform
policy issues, reforming hc
Michael Millenson: Will health reform move patient-centeredness to center stage?
Update 12:41 pm: fixed the first link. Michael Millenson, whom we welcomed to SPM in December with his first post here, submits this, about his latest work: How has listening to the patient’s voice grown from an ethical demand of the patient rights movement into a series of specific, measurable behaviors? That question, and issues [...]
Read Morepolicy issues, reforming hc
Federales finalize Accountable Care Organization regs, define “patient engagement” and “patient-centeredness”
The Patient Protection and Affordable Care Act (aka the health reform law) added “patient engagement” and “patient-centeredness” to the United States Code’s lexicon. Yesterday, the Centers for Medicare and Medicaid Services finalized the official definition of these terms for purposes of Accountable Care Organizations that may seek to participate in the Medicare Shared Savings Program. [...]
Read Moree-pts resources, positive patterns, reforming hc, trends & principles
Healthcare.gov goes live: terrific site on health coverage options
This week the Department of Health & Human Services (HHS) introduced Healthcare.gov, a consumer information website mandated by the Affordable Care Act (aka the health reform bill). A video of the introduction meeting is here. The site is fabulous; HHS Chief Technical Officer rightly says that the best praise they’ve gotten is that it doesn’t [...]
Read Moree-patient stories, general, Why PM
A family becomes e-patients, of necessity — and succeeds
This is an inspiring story from several years ago of how a family became e-patients. When things got rough they were empowered and engaged, taking matters into their own hands. As the picture shows, there’s a happy ending, though it was rough along the way. Unlike millions in the US today, Gangadhar Sulkunte and his [...]
Read Moregeneral, news & gossip, policy issues, reforming hc
What do YOU think they mean by “health reform”?
After hearing about 800 million mentions of “healthcare reform” in the past couple of months, this weekend I visited my normal (not-HC-geek) family in Maryland for Mom’s 80th birthday. (Woohoo! Large clan descends, six siblings and most of the grandlings.) Inevitably the subject of reform came up, and I realized not everyone is aware of [...]
Read Moree-patient stories, hc's problem list, news & gossip, policy issues, reforming hc
“No political power center for regular people”
in health reform
Aliya Sternstein writes for NextGov, a site devoted to “technology and the business of government.” We spoke last week for her piece about the White House’s use of social media. There are some people who, when you speak with them, the conversation goes to new places. This was one of those times.
Read More
