Society for Participatory Medicine
e-patients.net blog
Health Research
found on the net, medical records, policy issues, trends & principles
Chilmark: “Where is the consumer in HIEs?”
As we adopt new technology NOW is the time to think strategically: “As I make my next move, where do I end up? How am I positioned for the next step?” Patients have a lot at stake in adoption of Health Information Exchanges (HIEs). Chilmark Research has posted a good summary of how we patients [...]
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The Pew Internet/Health FAQ
A big part of my job, and one I love, is answering questions, mostly from reporters. Sometimes I have just the data or insight someone needs, often I recommend someone else. Here is a sample of frequently-asked questions and my current answers. Please add your questions and answers in the comments: What are you curious [...]
Read Morepolicy issues
Tell the FDA the whole story, please
I scan menus for keywords (fig, parsnips, salmon…) and it turns out I scan Twitter the same way, looking for anyone who is talking about my favorite topics (data, consumers, information quality…) So when I saw Jonathan Richman‘s tweet the other night, I couldn’t resist it: Anyone ever seen data on the overall accuracy of [...]
Read Morenews & gossip, positive patterns, pt/doc co-care, reforming hc, trends & principles, Why PM
Christensen/Hwang: “Power to the Patients” (The Atlantic)
“While other industries take as their focus such shallow concerns as the making of money, the health care profession prides itself on dealing with matters of life and death. But that’s not the only thing distinguishing health care from other industries: it is also unique in the extent to which it excludes consumers from important [...]
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