Society for Participatory Medicine
e-patients.net blog
Hhs
policy issues, positive patterns, research issues
Agency seeks *patients*(!) for Patient Centered Outcomes project. Too few are stepping up! (You??)
Corrections 8:45 pm ET Monday 10/24: This post’s title originally said HHS was seeking patients. Actually it’s PCORI, a new non-government agency, as described below. Both affect the future of healthcare, but PCORI isn’t part of HHS. The title also said “None are stepping up,” which disrespected those who had. “Too few” is better. As [...]
Read Moremedical records, policy issues
Heads-up on EMR usability discussion
On April 21 I’ve been invited to testify again on behalf of patients at a meeting organized by the Office of the National Coordinator for health IT. As we did here twice last year, let’s discuss what the meeting should here. Here’s the document they sent. Comments, please! Certification/Adoption Workgroup April 21, 2011 9:00 a.m. [...]
Read Moree-pts resources, positive patterns, reforming hc, trends & principles
Healthcare.gov goes live: terrific site on health coverage options
This week the Department of Health & Human Services (HHS) introduced Healthcare.gov, a consumer information website mandated by the Affordable Care Act (aka the health reform bill). A video of the introduction meeting is here. The site is fabulous; HHS Chief Technical Officer rightly says that the best praise they’ve gotten is that it doesn’t [...]
Read Morefound on the net
Gov 2.0 Expo: Health Geek Guide
The cross-disciplinary smorgasbord that is Gov 2.0 Expo will be held this week in DC. The agenda is packed with nerdy temptations (danah boyd! Anil Dash! Tim Berners-Lee!) but here are my can’t-miss sessions.
Read Moree-pts resources, medical records, policy issues, pt/doc co-care, reforming hc, Why PM
Testimony submitted to the Meaningful Use workgroup (and an urgent call for citizen participation)
There’s an important call to action below. If you care about making healthcare more responsive to us, and less responsive to vendors, please read to the end. This is short. Thanks to all of you who submitted comments on this week’s post, offering feedback. Here is the PDF I submitted today, which is being distributed to [...]
Read Moremedical records, policy issues, pt/doc co-care, Why PM
Tell HHS: What’s the role of patient generated data in Meaningful Use?
Next Tuesday Regina Holliday and I are among those testifying to the Health IT Policy Committee’s workgroup on Meaningful Use. Please help me decide what to submit for my testimony. My session is Panel 2: Incorporating Patient-Generated Data in Meaningful Use of HIT. Questions: a. What is the role of patient-generated data in improving health [...]
Read Morepolicy issues
Tell the FDA the whole story, please
I scan menus for keywords (fig, parsnips, salmon…) and it turns out I scan Twitter the same way, looking for anyone who is talking about my favorite topics (data, consumers, information quality…) So when I saw Jonathan Richman‘s tweet the other night, I couldn’t resist it: Anyone ever seen data on the overall accuracy of [...]
Read Morepolicy issues, positive patterns, pt/doc co-care, trends & principles, Why PM
Give patients (that’s you) access to all their (your) data – so they can help
Cross-posted from my website, ePatientDave.com – the happy home for my new business! I’ve just returned from Toronto, where I gave the opening keynote at the Medicine 2.0 Congress. It was titled “Gimme My Damn Data,” which is an unconventional title for an opening address, but I meant it. Here’s why. A new world of [...]
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