Society for Participatory Medicine
e-patients.net blog
Hipaa
medical records, policy issues, reforming hc
Society for Participatory Medicine Files Comments in Support of Proposed CLIA and HIPAA Regs Making Lab Results Available to Patients
As you may recall, in September the federales issued proposed regulations that would make all lab results subject to the basic rule that all patient records should be provided to the patient upon request. See the post on e-patients.net explaining the proposed rule on access to lab results and its background. Following discussion in the comments to the blog [...]
Read Morepatient networks, policy issues
A New Conversation About Health Privacy: Who’s In?
Facebook has sparked a new debate about privacy and I think it’s time to bring it to health care.
Read Morepatient networks, policy issues, positive patterns
The Decision Tree: How Better Health Can Scale
“The internet was created to connect people and groups. The first step is to share stories. The next step is to share quantitative observations.” “Health care has been locked up in regulatory amber. HIPAA was passed in 1996, almost perfectly timed to cut off health care from the internet. But there is a loophole: to [...]
Read Moremedical records, policy issues, Why PM
Second wave of comments on Health IT safety issues
Last month I posted the testimony I submitted to the Adoption/Certification Workgroup of the Health IT Policy Committee. (I urge interested parties to review the links to other resources in that post.) Today Paul Egerman, chair of that team, circulated a preliminary draft of recommendations from that meeting. Here is my response tonight, edited a [...]
Read Morehc's problem list, medical records, policy issues
“HIPAA is SO 1996″
That’s a direct quote from Paul Tang, of the Palo Alto Medical Foundation, at last week’s meeting of the Health IT Policy committee, of which he is vice chair. Dr. Tang was riffing on an e-Patient Dave quote, which I read during my testimony: I want innovation at a rate that resembles the rate of [...]
Read Morepolicy issues
HIPAA’s Broken Promise
If you hate HIPAA, it’s your lucky day. Paul Ohm is handing you ammunition in his article, “Broken Promises of Privacy: Responding to the Surprising Failure of Anonymization.” His argument: our current information privacy structure is a house built on sand. “Computer scientists…have demonstrated they can often ‘reidentify’ or ‘deanonymize’ individuals hidden in anonymized data [...]
Read Moremedical records, policy issues, trends & principles
EMRs: “Would you take it if it were FREE?”
Blogger John at the “EMR (EHR) and HIPAA” blog posted a musing that caused my business antennas to twitch. A vigorous discussion has started in the comments.
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