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	<title>e-Patients.net &#187; Holter Monitors</title>
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	<itunes:summary>because health professionals can&#039;t do it alone</itunes:summary>
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		<title>e-Patients: a high tech group wants our input (gasp!) on connected health. DO IT!--e-Patient Dave</title>
		<link>http://e-patients.net/archives/2009/08/e-patients-a-high-tech-group-wants-our-input-gasp-on-connected-health-do-it.html</link>
		<comments>http://e-patients.net/archives/2009/08/e-patients-a-high-tech-group-wants-our-input-gasp-on-connected-health-do-it.html#comments</comments>
		<pubDate>Fri, 07 Aug 2009 02:57:53 +0000</pubDate>
		<dc:creator>e-Patient Dave</dc:creator>
				<category><![CDATA[medical records]]></category>
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		<description><![CDATA[I&#8217;m not making this up; it&#8217;s a wonderful thing. MassMEDIC, the Massachusetts Medical Device Industry Council, is looking at the future of &#8220;connected health&#8221; devices. They&#8217;ve got a survey that&#8217;s been given to all kinds of industry and policy people, and now, blow me down, they want patients to take the survey too. DO IT!  [...]]]></description>
			<content:encoded><![CDATA[<p>I&#8217;m not making this up; it&#8217;s a wonderful thing. <a title="epd" href="http://www.massmedic.com/" target="_blank">MassMEDIC</a>, the Massachusetts Medical Device Industry Council, is looking at the future of &#8220;connected health&#8221; devices. They&#8217;ve got a survey that&#8217;s been given to all kinds of industry and policy people, and now, blow me down, they want <em>patients </em>to take the survey too.</p>
<p><strong>DO IT!  Go get your friends.</strong><em> Let&#8217;s make this invitation rewarding to the industry people who invited us. </em></p>
<p>The link to the survey is at bottom. But first, if you&#8217;re not up on what connected health is, get informed. Here&#8217;s a start. <em><br />
</em></p>
<p><img title="More..." src="../wp-includes/js/tinymce/plugins/wordpress/img/trans.gif" alt="" /><span id="more-2946"></span><br />
<em></em><a title="epd" href="http://en.wikipedia.org/wiki/Connected_Health" target="_blank">The Wikipedia article</a> defines it nicely:</p>
<blockquote><p><strong>Connected Health</strong> is a term used to describe a model for healthcare delivery that uses technology to provide healthcare remotely.</p>
<p>Connected health aims to maximize healthcare resources and provide increased, flexible opportunities for <strong>consumers to engage with clinicians</strong> and <strong>better self-manage their care.</strong> It uses technology – often leveraging readily available consumer technologies – to deliver patient care outside of the hospital or doctor’s office.</p>
<p>Connected health encompasses programs in telehealth, remote care (such as home care) and disease and lifestyle management, and is associated with efforts to improve chronic care.&#8221;</p></blockquote>
<p>I&#8217;d add that it&#8217;s not <em>just </em>about chronic care.  In my grand semi-educated vision, we&#8217;d have all kinds of devices:</p>
<ul>
<li><strong><a href="http://www.amazon.com/dp/B000O58QM0/?tag=googhydr-20&amp;hvadid=2208157061&amp;ref=pd_sl_2zjw4ozfzw_b" target="_blank">My blood pressure machine</a></strong> already has USB and uploads data to my PC. (I want it to have wifi and upload data to my doctor.)</li>
<li><strong>My bathroom scale</strong> should do the same, eh?</li>
<li>Why not let diabetics&#8217; <a href="http://freestylenavigator.com/ab_nav/url/content/en_US/10.20:20/general_content/General_Content_0000010.htm" target="_blank"><strong>CGM devices</strong></a> (continuous glucose monitors) should upload their readings into their personal health record?</li>
<li><strong>Cardiac monitors</strong> could do the same. (An example that may or may not be on target is <a href="http://is.gd/25O5x" target="_blank">Holter monitors</a>.)</li>
<li>And so on and so on.</li>
</ul>
<p>All that data would be online (just like your bank statement) and both you and your consultant/doctor could view it. And clever software could monitor it for you.</p>
<p>A key principle, in my view, is that <strong>automation works:</strong> things that are automated get done much more reliably than things that I have to remember and &#8220;get around to.&#8221;</p>
<p>There&#8217;s no better example of this in my life than computer backups. Over the years I spent over a thousand dollars on well-intentioned backup devices and software: Zip drives, external hard drives, tape drives. Mind you, I <em>know </em>the right way to do backups (full backup monthly or weekly, incremental in between, blah blah blah) but knowledge isn&#8217;t action. (In medical lingo I was a &#8220;non-compliant&#8221; backer-upper.)</p>
<p>Y&#8217;know what works for backup? Carbonite: you start it running and it <strong>runs in the background, continuously</strong> backing up your data over the internet. So, last November, when we visited a delicious B&amp;B in Provincetown and I just <em>happened</em> to drop my computer on a gorgeous tile floor, I put in a new disk drive and all my data came back. (It took 3 days, but <em>nothing</em> was lost. It worked. I only had to reinstall my applications.)</p>
<p>So I&#8217;m like all <em>over</em> the idea of connected health gadgets that gather data and pump them out to elsewhere.</p>
<p>The survey is a dozen questions, and takes 5-10 minutes. <strong>You can start it and work your way through and stop and come back later. </strong>I did that, to let myself think.</p>
<p>Be aware, this is a business survey, so a lot of the questions about what factors will help or hinder adoption of the technology.  On some, I had to use &#8220;Other&#8221; and enter &#8220;I have no idea&#8221; or &#8220;There&#8217;s no one single cause.&#8221; Express yourself!</p>
<p>One last note: the final question is &#8220;<abbr title="Question 12"></abbr>In what way could Connected Health be most beneficial to you?&#8221; It&#8217;s an open text box, and <em>you&#8217;re invited to type a personal note</em> about your condition or particular interests, if you want. (That topic wasn&#8217;t designed into the survey, but they said we could use it that way, if we want.)</p>
<p>The survey starts <a href="http://www.surveymonkey.com/s.aspx?sm=cwqHWXswowiHR3yCpT7gOQ_3d_3d" target="_blank">here</a>.</p>
<p>Thanks to MassMEDIC for including <strong>the ultimate stakeholder</strong> in the research, and especially thanks to researcher Vaishali Kamat of <a href="http://www.cambridgeconsultants.com" target="_blank">Cambridge Consultants</a>, who met with me in Harvard Square one rainy Sunday for more than an hour and who returned today, inviting patients to participate in the survey.</p>
<p>DO IT! And go get your friends. Have them study up, think, and respond. Deadline is August 15.</p>
<p>p.s. If you become a Carbonite subscriber, tell &#8216;em I sent you so I get referral points toward my free toaster. <em>And</em>, be aware that their tech support is, well, offshore: a chat session yesterday started with the rep saying &#8220;I will defiantly help you with same.&#8221; (I replied &#8220;Are you angry?&#8221;) (Yes, I did.)  But we eventually got it done.</p>
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