Society for Participatory Medicine
e-patients.net blog
Human Beings
found on the net
Clinical Trial Data Rights?
“If you expose human beings to an experimental treatment, the public has a fundamental right to see the results of those experiments.” – Steven Nissen, chairman of the cardiology department at the Cleveland Clinic, quoted in The Sunlight Foundation’s account of Bray Patrick-Lake, an e-patient who has left with only questions after a clinical trial [...]
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US Health Care Reform: A Contemporary Example of
Goodhart’s Law?
Goodhart’s law – named after a former chief economist of the Bank of England – says that whatever social or economic indicator or other surrogate measure you adopt as a financial target ceases to be a relevant target once you have adopted it because it loses the information content it had originally. What is the [...]
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