Society for Participatory Medicine
e-patients.net blog
information therapy
demographics, trends & principles
The Social Life of Health Information
The Pew Internet/California HealthCare Foundation report, The Social Life of Health Information, is packed with new findings from a survey of 2,253 adults, including 502 cell-phone interviews, conducted in either English or Spanish. We spent a bundle of money on making this a random sample of the U.S. population, but guess who got a call [...]
Read Moremedical records, policy issues, positive patterns, reforming hc, trends & principles
Consumer Partnership for eHealth’s thoughts on Meaningful Use
Precursor posts: The “meaningful use” debate (my thoughts); the Markle Foundation’s work on the subject Thanks to Josh Seidman of the Information Therapy Blog for steering me to the “meaningful use” work that’s been done by the Consumer Partnership for eHealth – another great group I’d never heard of. I’m loving the way Web 2.0 [...]
Read Moretrends & principles
Mobile could be a game-changer – but only for those who get in the game.
Original title: Health 2.0 meets Ix: Susannah Fox’s presentation Here are my prepared remarks for the “Navigating the New Health Care Delivery System” segment at the Health 2.0 meets Ix conference (with the lines I added to respond to other themes brought out during the conference in bold) “Is Health IT the answer? Only if [...]
Read Morefound on the net
Participatory Democracy, Participatory Medicine
A sneak preview of my remarks at the “Health 2.0 meets Information Therapy” conference appears on the IxCenterBlog: Participatory Democracy, Participatory Medicine. A good discussion of the issues has already begun there and on The Health Care Blog.
Read Moregeneral, policy issues, pt/doc co-care, reforming hc, trends & principles
When is “Information Therapy” Simply Learning?
I sometimes wonder whether we complicate things that are pretty simple, by assigning more labels and new terms to things that have perfectly good labels already. For instance, I once thought I knew what “information therapy” meant. It meant a doctor or other healthcare professional “prescribed” certain information for you to read, so you could [...]
Read Morefound on the net
Reducing Disparities, Spreading Improvement
Josh Seidman asks a very good question that goes toward our discussion of spreading improvement and the digital divide, “If [targeted] interventions… have been shown to have an enormous impact on the health of these populations, maybe Ix and related initiatives can be applied to a wide variety of challenges that underserved populations face — [...]
Read Morept/doc co-care
Three Simple Rules
When in 2002 we came out with our bold new concept of “information therapy” I was sure that Tom would love the idea of doctors or health plans prescribing information to consumers. He didn’t. He was concerned that the prescribed information from clinicians would undermine the patient’s right or ability to search for information from other self-helpers…
…I think I am there—but then Tom might still not agree—for I still think that the self-help world will work better when the patient is also being prescribed information as a part of the process of care.
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