Society for Participatory Medicine
e-patients.net blog
Jessie Gruman
e-pts resources, reforming hc, Why PM
The Patient Activation Measure (PAM): a framework for developing patient engagement
In any movement there’s a stage of maturation, where aspirations get fleshed out with specifics. That time is arriving for participatory medicine. As patient engagement (aka consumer engagement) earns attention, the question increasingly arises: “Where do we start? What can we do?” More specifically, “What do we mean when we say ‘patient engagement’?” CFAH Engagement [...]
Read Morepolicy issues, reforming hc, Why PM
“Design and create a safe, decent, patient centered healthcare system.”
Yesterday the New York Times reported that some health insurers have applied to regulatory agencies to push premiums sharply higher - usually double-digit increases, while citizens are suffering. This falls on top of the 11 year history reported last year by the Kaiser Family Foundation: wages and inflation are up ~40%, while health costs and worker [...]
Read Moreshared decision making, Why PM
“They never took his sock off”: a parable of patient empowerment, resourcefulness, and literacy
Jessie Gruman’s Journal of Participatory Medicine commentary, “Evidence That Engagement Does Make a Difference,” reminded me of a talk delivered by Alice Tolbert Coombs, M.D., last September: As you listen to Dr. Coombs’s chilling story about a man who lost his foot because nobody ever took his sock off to examine it, please review Jessie’s [...]
Read Morenet-friendly docs, pt/doc co-care, reforming hc, trends & principles, Why PM
Why the Journal of Participatory Medicine?
Next week at the Connected Health Symposium in Boston, the Society for Participatory Medicine will launch its new journal. In keeping with the society’s spirit of physician-patient partnership, the Co-Editors in Chief are a physician and a patient: Charlie Smith MD (the primary physician of our founder “Doc Tom” Ferguson) and Jessie Gruman, Ph.D., who [...]
Read Moregeneral, Why PM
Participatory Medicine and Patient Research: It’s Gonna be a New World, indeed!
Matthew Herper’s post about thalidomide treatment of Myeloma is a good example of how patients will contribute to medical knowledge in the future, and may form a cautionary tale for patients who get involved to this degree in formulating new treatment approaches.
Read More
