Participatory Medicine around the world: the Seven Preliminary Conclusions reach India

A Google alert popped up today, saying that a participatory physician in India had cited this blog. Don’t we love it when social media let empowering information spread! It’s exactly what our founder “Doc Tom” predicted with his now-famous 1995 triangle slides: the internet gives us access to information and to each other, which puts a whole lot of power in hands where it didn’t use to be.

In this case, the doctor picked up one of our classic posts, the Seven Preliminary Conclusions from the e-patient white paper, which was written before I’d ever heard the word “e-patient.” As we approach the October launch of the Journal of Participatory Medicine, I re-read that post and found renewed meaning. Here it is. Read more

The Social Life of Health Information

June 10, 2009 · Filed Under demographics, trends & principles · 22 Comments 

The Pew Internet/California HealthCare Foundation report, The Social Life of Health Information, is packed with new findings from a survey of 2,253 adults, including 502 cell-phone interviews, conducted in either English or Spanish.

We spent a bundle of money on making this a random sample of the U.S. population, but guess who got a call on his cell phone? None other than e-patient Dave! He had never talked with me about the survey questions or reviewed a draft, so I decided to keep his interview in the mix, but he surprised the heck out of the interviewer when he finished the sponsor identification for her at the end.

It’s a long report, so here is a cheat sheet. Read more

The e-patient white paper: Seven Preliminary Conclusions

January 27, 2009 · Filed Under chapter reviews · 25 Comments 

One year ago today I finished reading e-Patients: How they can help us heal healthcare, the e-patient white paper. It turned my head around because although I’d experienced excellent care in almost all ways, it showed that I as a patient have far more to contribute than I ever would have imagined.

The people who assembled that report (not me) are smart, perceptive, and insightful about the future. When I “synopsized” each chapter in posts on my own blog last summer, here’s what I wrote about chapter 2.

Read more