Kidney Cancer

hc's problem list, medical records, policy issues, pt/doc co-care

What part of “Give us our damn data” do you not understand?

e-Patient Dave | December 15, 2009

Yesterday I attended “How Access to Information Can Empower Patients and their Caregivers,” conducted by the Consumer Partnership for eHealth. CPeH is an alliance of stakeholder groups sponsored by the National Partnership for Women and Families. It has no web site of its own – it’s just a Partnership for Consumer eHealth (duh), convening to [...]

e-patient stories, key people, reforming hc

Regina Holliday’s mural is in the BMJ

e-Patient Dave | September 12, 2009

We’ve written here before about Regina Holliday (follow her blog), whose husband Fred died June 17. In today’s edition of the British Medical Journal, her mural is the picture of the week: Ted Eytan MD took the picture and posted it on Flickr. Today he sent this email to Reggie: ====== Dear Regina, You made [...]

e-pts resources, net-friendly docs, patient networks, positive patterns, pt/doc co-care, pts as teachers, reforming hc, trends & principles

e-Patients and Participatory Physicians Creating Podcasts

e-Patient Dave | September 1, 2009

I can barely contain my happiness (oh heck, I’ll let it spill) at this: participatory patients and physicians creating educational content, using free internet software tools, and posting it for people to read (free) around the world. I’m a member of the ACOR kidney cancer patient listserv, and a patient at Boston’s Beth Israel Deaconess [...]