Society for Participatory Medicine
e-patients.net blog
Mayo Clinic
patient networks, pt/doc co-care
When Patients Band Together: Far From a Disgrace
When it comes to news sites, I love scanning readers’ comments as much as the original articles. Comments are an unfiltered feed, a window into public opinion (in other words, catnip for someone like me). One thread caught my eye recently. Ron Winslow wrote a very nice piece in the Wall Street Journal about how [...]
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This Business of Being Patients Is Far From All We Do
In this vivid talk [start at 5:05], Dr. Victor Montori of the Mayo Clinic tells about what one of his patients must do to address his high blood pressure, diabetes, his weight and the events in his life that compete for his attention. He describes how guidelines-based care and pay-for-performance incentives inadvertently undermine this patient’s willingness to take action. And he proposes that clinicians reorganize the care they deliver to 1) take into account the burden of treatment demands; 2) organize care to minimize disruption and 3) order treatment priorities from the patient’s perspective.
Read Morepositive patterns
Going Viral Against HIV and STIs
The New York State Department of Health AIDS Institute, in partnership with AIDS.gov, held a one-day forum on social media, HIV, and sexually transmitted infections (STI) that turned out to be an unfiltered discussion of love, truth, and technology. Why was it so smoking hot? And is this unique to conferences (or panels) about sexual [...]
Read Morepositive patterns, reforming hc
What is the ROI on love?
Last week’s Mayo Transform symposium was a two-day excursion into the world of science, data, design, and the secret ingredient to health: love. Patch Adams, MD, kicked things off in grand style. If you’ve never seen him speak, treat yourself to a hit of his energy: In 1971, he and his compatriots opened a 24×7 [...]
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The Power of Mobile (Video)
The video of my Mayo Transform 2010 speech, The Power of Mobile, is now up on the conference site as well as on YouTube. It was an honor to be part of this event. Many thanks to David Rosenman and his team for inviting me!
Read Moredemographics, trends & principles
The Power of Mobile
Prepared for Mayo Transform 2010: Thinking Differently About Health Care (video now available). Ten years ago, I wrote the Pew Internet Project’s first report on the impact of the internet on health care, calling it “The Online Health Care Revolution.” Back then, the idea that people were searching online for health information was revolutionary. All [...]
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Health Sites: Some Are More Equal Than Others
Update: Roni Zeiger of Google Health emailed me and gave permission for me to post the following statement, which I think is a helpful addition to the conversation: Health information is obviously an important category of information users are looking for. For this health search feature we decided to offer users one source each from [...]
Read Morepositive patterns, pt/doc co-care, trends & principles, Why PM
Recommended 2-minute video: “Patient Revolution”
If you haven’t already, please watch this, which is the best concise introduction to e-patients and participatory medicine I’ve seen: Susannah Fox mentioned this video six weeks ago, in a quickie post in our “found on the net” sidebar. But that was just about the video itself. I have a couple of points to add: [...]
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