Society for Participatory Medicine
e-patients.net blog
Medical Data
e-pts resources, general, medical records, others' e-patient stories
Kenneth S. Spriggs: The Benefits Of Visualizing Your Medical Data
Guest blogger Ken Spriggs talks about how he made sense of his medical data by creating a graphic electronic health record, the DIYEHR. [Update 11/25: the data visualization that Ken created is so extraordinary that we're adding it here, four days after the original post. LOOK how he helped his physicians "get" his medical history! [...]
Read Morepolicy issues, positive patterns, pt/doc co-care, trends & principles, Why PM
Give patients (that’s you) access to all their (your) data – so they can help
Cross-posted from my website, ePatientDave.com – the happy home for my new business! I’ve just returned from Toronto, where I gave the opening keynote at the Medicine 2.0 Congress. It was titled “Gimme My Damn Data,” which is an unconventional title for an opening address, but I meant it. Here’s why. A new world of [...]
Read Moree-patient stories, general, hc's problem list, medical records, news & gossip, reforming hc, trends & principles
Imagine someone had been managing your data:
next anecdote
Next anecdote about poorly managed medical data: Amen! Just had an incident where my SS# was attached to a different patient’s name in the electronic med record. And the health facility will not tell me where the error occured, or how long someone else’s name was linked to my ss# and my medical record. Discovered [...]
Read Moree-pts resources, general, medical records, policy issues, positive patterns, pt/doc co-care, reforming hc
The Markle Foundation’s work on Meaningful Use
Last night I posted my own thoughts on the definition of “meaningful use,” a term that will have significant impact on our next-generation medical records systems. To me it’s vital that the term be defined to include full access for you and me (patients) to our own medical data. I’ve come to the conclusion that [...]
Read Moree-pts resources, trends & principles
Immediate data requested. Please share with breast cancer patients everywhere.
Chapter 5 of the e-Patient White Paper is E-Patients as Medical Researchers. It details how, in the absence of sufficient medical data for their cases, patients and parents have conducted extraordinary research, time after time, often stunning the medical professionals. A key sentence in Chapter 5 is “One of the great benefits of patient-initiated research [...]
Read Moree-patient stories, general, hc's problem list, news & gossip, reforming hc
E-Patient Discovers Significant Flaws in System, Spin Doctors Get to Work
It is absolutely amazing to watch the unfolding saga the moment a real patient enters real data into Google Health from his hospital’s medical records. The way the marketing folks tell us, this is a seamless exercise that gets you up and running on personal health records (PHRs) like Google Health instantly. The reality, as [...]
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