Medicine

 

policy issues, positive patterns, research issues

NEJM Data Analysis Challenge: can others create value by seeing researchers’ data?

This is big. Please share it with anyone you know who’s a believer in open data. You may have heard that back in January the New England Journal of Medicine created a firestorm by saying “parasites” about people who want to see a researcher’s original data. Many (including Vice President Biden, at Health Datapalooza (video)) have objected strongly, saying […]

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policy issues, pt/doc co-care, pts as teachers

Don Berwick wants healthcare to take it to the limit, with Patients as Peers

Decades ago, there began a rigorous effort to tackle health care problems by focusing on science, improvement and measurement. A prominent driver of all things related to practice betterment has been The Institute of Healthcare Improvement, or IHI. Led by pediatrician Don Berwick and colleagues, IHI’s siren song has been “Plan, Do, Study and Act” […]

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general

Misdiagnosis: A Chronic Condition Looking for a Cure

According to a report in the BMJ Quality and Safety Journal, each year in the U.S. approximately 12 million adults or 1 out of 20 patients who seek outpatient medical care, are misdiagnosed in a way that could cause severe harm. These alarming statistics are further reinforced by a new study from the Institute of […]

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e-pts resources, general, hc's problem list, key people, Patient Conference Participation, patient networks, positive patterns, pts as teachers, shared decision making

Sep 26 – Patient Summit on Diagnosis in Alexandria, VA

To all in the Washington/Baltimore/northern Virginia area (and elsewhere if you care to travel!): The patient committee of the Society for Improved Diagnosis in Medicine would like to invite you to our second annual Patient Summit on Diagnosis. The summit is part of the pre-conference program of the Diagnostic Error in Medicine conference and takes place […]

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end of life, general

The Medical Humanity of Oliver Sacks: In His Own Words

We science-medicine-poetry junkies, along with a sizeable portion of the world’s population, are mourning the death of Oliver Sacks, the neurologist and author who died last Sunday from metastasized melanoma. And as enthusiasts of Dr. Sacks’ catechisms on the soul of the patient, we turn to his own words of mourning, written over 40 years […]

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policy issues, positive patterns, trends & principles

SPM applauds King v Burwell – “making healthcare accessible & participatory for all”

The Society for Participatory Medicine believes that an effective healthcare system is a collaborative one, where care providers and the patients and families they care for work together toward the best possible health outcomes. The importance of this partnership cannot be overstated; its supporters range from the Institute of Medicine to the World Health Organization, […]

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policy issues, positive patterns, pt/doc co-care, trends & principles, Why PM

Mythbusting, “demanding patient” edition

We’d bet good money that anyone who identifies as an e-patient has been led to believe that their desire to participate actively in their medical care marks them as a “demanding patient.” The perception of demanding patients is that they’re behaving like spoiled divas at a medi-spa, with their demands driving up incidence of unnecessary […]

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general, positive patterns, reforming hc

Consumer Reports: “Respectful” treatment key to patient safety?

In a report released today (December 16, 2014), Consumer Reports shares insights from a survey of 1,200 people who were recently hospitalized. SPM is not surprised by the findings, which include the fact that patients who said they received respectful treatment by hospital clinicians reported fewer medical errors and better experiences in their hospital stays. […]

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general, policy issues, pt/doc co-care, reforming hc, trends & principles

Engaging Patients in Safety: Naughty or Nice?

This post by long-time SPM member Michael Millenson first appeared on the EngagingPatients.org blog. We’re re-posting it here to both put it on the membership’s radar, and to invite comments on Michael’s POV that “As much as we can argue that patient engagement with their own healthcare decisions is progress, asking patients to keep doctors honest about the […]

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policy issues, reforming hc, trends & principles

WHO in Geneva – SPM in the house!

SPM member Casey Quinlan (who’s posting this) was invited to attend an event at the WHO in Geneva. This post originally appeared on her Mighty Casey Media blog, and is reposted here in its entirety by SPM request. Guess who got invited to WHO? No, really. The World Health Organization (WHO) invited yours truly to its First Global […]

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