Society for Participatory Medicine
e-patients.net blog
Medicine
medical records, policy issues, reforming hc
Society for Participatory Medicine Files Comments in Support of Proposed CLIA and HIPAA Regs Making Lab Results Available to Patients
As you may recall, in September the federales issued proposed regulations that would make all lab results subject to the basic rule that all patient records should be provided to the patient upon request. See the post on e-patients.net explaining the proposed rule on access to lab results and its background. Following discussion in the comments to the blog [...]
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What do Participatory Medicine and OWS have in common?
The short answer is “plenty” but the longer one will have to wait. This is a work in progress, but in the meantime, I’m surfing the net and finding great stuff to share. In particular, see this video or read the transcript of ethicist Harriet Washington being interviewed by Amy Goodman. Together they discuss the [...]
Read Morefound on the net, JoPM
JoPM: Patient-oriented content on hospital websites
The Journal of Participatory Medicine has published a research paper entitled “Promoting Participatory Medicine with Social Media: New Media Applications on Hospital Websites that Enhance Health Education and e-Patients’ Voices.” The study analyzed the content of 14 top hospitals’ websites, particularly patient-oriented features. The authors conclude that the convergence of interactive media formats with web-based [...]
Read Moree-patient stories, general, shared decision making
Jonena Relth: Participatory medicine: my first-hand account
Jonena Relth submitted this guest post to share her very positive experience with her surgeon. I was being prepped for surgery last week and my surgeon, Dr. Davies, came in to discuss the procedure. He explained to me that he had reviewed my file several times and decided that he would prefer to perform a [...]
Read Morepolicy issues, reforming hc
Healthcare Associated Infections: What’s an Infographic Got To Do With It?
The good people at GE and JESS3 have come up with an HAI infographic. It’s pretty, and it conveys the horrible information that many of us already know — healthcare associated infections kill about 100,000 people a year, and add $35 billion a year to our collective health care bill (here in the US of [...]
Read Morefound on the net, news & gossip, positive patterns
Would Your Doctor Pay for Wasted Time? (CNN.com)
Strictly speaking this isn’t about participatory medicine, but it is about being an empowered consumer of care. There are several dimensions to empowerment, including (but not limited to): Knowing what you want Recognizing whether you’re getting it When you’re not, speaking up about it – courteously, when you can. You know real change is happening [...]
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First anniversary of our Declaration of Participation. Please renew!
How fitting for the Fourth – a year after our Declaration (see below), I just received my renewal notice for the Society for Participatory Medicine. Here’s a Doctor’s Channel interview, posted a year ago today, in which Society co-chair Alan Greene MD draws an analogy with America’s early presidents: Here’s the Declaration we posted a [...]
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National Library of Medicine’s ePatient Conference
The e-patient movement is so real that in April the National Library of Medicine had its first ePatient Conference. Yes, that’s what they called it. The event is covered on the inside front cover of the current Medline Plus, including Society co-chair e-Patient Dave. More info on Dave’s blog.
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Joe Kvedar’s “cHealth blog” (Connected Health)
We’re long overdue in welcoming Joe Kvedar MD of Partners Healthcare to the blogosphere. From his About page: “The term “connected health” reflects the range of opportunities for technology-enabled care programs and the potential for new strategies in healthcare delivery. “A division of Partners HealthCare, the Center for Connected Health works with Harvard Medical School-affiliated [...]
Read Moree-pts resources, medical records, policy issues, pt/doc co-care, reforming hc, Why PM
Testimony submitted to the Meaningful Use workgroup (and an urgent call for citizen participation)
There’s an important call to action below. If you care about making healthcare more responsive to us, and less responsive to vendors, please read to the end. This is short. Thanks to all of you who submitted comments on this week’s post, offering feedback. Here is the PDF I submitted today, which is being distributed to [...]
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