Society for Participatory Medicine
e-patients.net blog
NIH
trends & principles
Health Sites: Some Are More Equal Than Others
Update: Roni Zeiger of Google Health emailed me and gave permission for me to post the following statement, which I think is a helpful addition to the conversation: Health information is obviously an important category of information users are looking for. For this health search feature we decided to offer users one source each from [...]
Read Morepositive patterns
Shared Kismet: Wikipedia and the NIH
The National Institutes of Health hosted a Wikipedia Academy today to train scientists, communications staff, and other NIH staffers in how to contribute to what has become a top source for health information in the U.S. (For more details, please see the NIH press release, a Wikipedia project page, and a Wikimedia Blog post.) The [...]
Read Moredemographics, hc's problem list
NIH Summit on Health Disparities
NIH is sponsoring a summit this week, The Science of Eliminating Health Disparities. I heard about it from Mary Brophy Marcus’s article in USA Today and I found this press release online, but I haven’t seen other coverage of the event. If you spot stories about the summit in the news, on blogs, on Twitter, [...]
Read Morepolicy issues
Taxpayer Access: The NIH Public Access Policy
“Taxpayer access” – the principle that American taxpayers should have free, timely, public access to the results of publicly funded research – would change the public access to scientific articles, and put critical biomedical research into the hands of those who need it.
Read Moree-patient stories, others' e-patient stories
E-patient Interview: Sheryl Stein
Sheryl Stein, known to many as “wrekehavoc,” dispenses her wisdom and humor on a 6,000-member online community of parents (using good old listserve technology) and on her blog. In this third edition of our e-patient interviews, Sheryl talks about the power of community and how “reaching out via the internet is now an ingrained habit [...]
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