Open Access

general

My Right to Data, Happiness, and a Long and Healthy Life

Sarah Greene | June 26, 2009

“To alienate [patients] from their own decision making is to change them into objects.” – P. Freire, Pedagogy of the Oppressed The newly drafted Declaration of Health Data Rights, created by patient advocates, caregivers, health care professionals, technology and policy experts, and entrepreneurs (in some cases, all attributes in the same person), states that its [...]

policy issues

Open Access to Publicly-Funded Research: Let Them Eat Cake?

Susannah Fox | May 5, 2009

Marketplace aired a story last week entitled, “Publicly funded research for a price,” which echoed the story of Edwin Murphy, who in 1994 had to impersonate his doctor in order to read the risks and benefits of a medical procedure he was considering. (Hat tip to Carol Torgan for alerting me to the story.)

policy issues

Taxpayer Access: The NIH Public Access Policy

Jennifer | September 30, 2008

“Taxpayer access” – the principle that American taxpayers should have free, timely, public access to the results of publicly funded research – would change the public access to scientific articles, and put critical biomedical research into the hands of those who need it.