Participatory
e-patient stories, hc's problem list, pts as teachers, Why PM
Powerful new “Doctor becomes an e-patient” story in Journal of Participatory Medicine
Two years ago we wrote “Let’s hear it for the ‘d-patients’” — doctors who become e-patients themselves. We said “D-patients prove that patient empowerment is anything but anti-doctor. Heck, sometimes it’s a doctor preservation movement.” A new article in our Journal of Participatory Medicine provides a compelling example: A Physician’s Experience as a Cancer of the [...]
Read Moremedical records, policy issues, Why PM
Save lives first, *then* compete: Simple Interop for Healthcare
This post is my own expression, not an official view of the Society for Participatory Medicine. Vince Kuraitis and David Kibbe are running an excellent series, “Is HITECH Working?”* In last week’s entry they linked to this slide deck by Wes Rishel and David McCallie of IT consulting firm Gartner. See discussion before watching.
Read Morept/doc co-care, Why PM
Patient to doctor: “Why aren’t you harder on me?”
A joint post by e-Patient Dave and Dr. Danny Sands, written from alternating points of view. Danny: An important moment happened a few months ago during office hours – important because it brought a profound shift in Dave’s view of the doctor-patient relationship. And that’s a vital part of participatory medicine.
Read Moremedical records, policy issues, trends & principles, Why PM
“The Quantified Patient”: my talk at “Quantified Self” show&tell, December 2009
The Quantified Self (aka “QS”) is an informal San Francisco based group of people who are tracking one thing or another about their lives. (Could it exist anywhere else??) They have occasional “Show&Tell” meet-ups, with elbow-rubbing and a series of quick talks, 10-15 minutes each. A few weeks ago I was in town for a [...]
Read Morefound on the net
Journal of Participatory Medicine cited on Scientific American blog
Scientific American writer Robin Lloyd (Twitter: @RobinLloyd99) has written a nice, clear, hit-the-nail-on-the-head post on their blog about our Journal of Participatory Medicine.
Read Moremedical records, positive patterns, pt/doc co-care, trends & principles, Why PM
Why Participatory Medicine?
For most people, their impetus to be actively engaged in healthcare comes from an experience with serious illness—either their own or a loved one’s. My journey into participatory medicine began during my internal medicine residency at Boston City Hospital, a public urban hospital, in the late 1980s. While there, I had a number of realizations [...]
Read Morefound on the net
Age of Participatory Medicine
Kevin Kruse posted a video yesterday which includes this line: The age of participatory medicine has begun. It’s a promo for e-Patients Connections 2009, a conference to be held in Philadelphia this October, but also has good citations (ahem, including my reports). See what you think.
Read Morepositive patterns, pt/doc co-care, trends & principles
The power of listening and being heard
This is a special occasion for me, a guest post by Dr. Louise Glaser. Louise is a pediatrician in the Kaiser Permanente system, where among other things she’s Chief of Leadership and Communication Development in the Sacramento area. I met her a year ago at the annual Conference for Global Transformation (CGT), and again this [...]
Read More


