Society for Participatory Medicine
e-patients.net blog
Patient Centered Care
e-pts resources, found on the net, JoPM
Making Sense of “Patient-Centered Care”
The Journal of Participatory Medicine received a nice recommendation from Paul Levy, former CEO of Beth Israel Deaconess Medical Center, in his blogpost on where to find reliable information about patient-centered medicine. Levy also recommends a new non-profit site called uPrevent, which translates research findings into actionable information for patients. Read the post at http://www.golocalprov.com/health/paul-levy-how-to-become-a-more-informed-patient/.
Read Morefound on the net, net-friendly docs, positive patterns, shared decision making, social media
Technology Enables Collaborative Doctor-Patient Relationships
SPM member and Bay Area writer Eve Harris looks at information technology’s role in promoting participatory medicine on KQED’s State of Health blog. Harris discusses tools familiar to most e-patients, but what’s really noteworthy here is the evidence that more physicians are recognizing the value of these patient-empowerment tools, contributing to a trend toward patient-centered, [...]
Read MoreJoPM, others' e-patient stories, positive patterns, pt/doc co-care, reforming hc
A physician who really understands patient-centered care
The Journal of Participatory Medicine has just published “The Patient Will See You Now,” a thought-provoking and rather moving narrative by John Krueger, MD. In telling his own story of becoming and maturing as a physician, the author persuasively argues that the key to practicing patient-centered medicine is devoting time to listen to patients’ stories [...]
Read Moregeneral, others' e-patient stories
Elaine Schattner: Don Berwick, Head of CMS, on the Value of Patient-Centered Care
Usually we talk about participatory medicine at the level of the individual care relationship, but increasingly we’re seeing the need to “Design and create a safe, decent, patient centered healthcare system.” And as we start to get real about that – concrete, tangible change– I’ve heard people wonder, “What do they mean by patient-centered?” Thanks [...]
Read Morepolicy issues, reforming hc, trends & principles
Are patients knights, knaves, or pawns?
Sachin Jain and John Rother’s JAMA commentary, “Are Patients Knights, Knaves, or Pawns?” is an article that begs to be shared. The first time I read it I had to stand up, I was so excited — how can I design a survey to capture these questions?! was my first thought. My second thought was [...]
Read Moregeneral
This Business of Being Patients Is Far From All We Do
In this vivid talk [start at 5:05], Dr. Victor Montori of the Mayo Clinic tells about what one of his patients must do to address his high blood pressure, diabetes, his weight and the events in his life that compete for his attention. He describes how guidelines-based care and pay-for-performance incentives inadvertently undermine this patient’s willingness to take action. And he proposes that clinicians reorganize the care they deliver to 1) take into account the burden of treatment demands; 2) organize care to minimize disruption and 3) order treatment priorities from the patient’s perspective.
Read Moremedical records, policy issues, pt/doc co-care, Why PM
Tell HHS: What’s the role of patient generated data in Meaningful Use?
Next Tuesday Regina Holliday and I are among those testifying to the Health IT Policy Committee’s workgroup on Meaningful Use. Please help me decide what to submit for my testimony. My session is Panel 2: Incorporating Patient-Generated Data in Meaningful Use of HIT. Questions: a. What is the role of patient-generated data in improving health [...]
Read Moremedical records, trends & principles, Why PM
Is Your Healthcare Practice Patient-centered?
Yesterday I was at a monthly TelePresence meeting of the Person Centered Health initiative, a group that started in Canada that’s closely aligned with the Society for Participatory Medicine. At this meeting, some expressed concern that the memes of “person-centered health,” “patient-centered healthcare,” “participatory medicine,” and the like are becoming so overused as to become [...]
Read More
