Society for Participatory Medicine
e-patients.net blog
Patient Experience
e-patient stories
ER tweet: “If my husband dies, I’m going to go [eff]ing ballistic”
When Benn Rosales had a heart attack in December, his wife Lani, a very active member of the Twitterati, tweeted throughout the experience. Afterward she thought to compile those tweets as a record of Benn’s e-patient experience: “this hospital is understaffed and we’re being sh*t on because of it. if my husband dies i’m going [...]
Read Moregeneral
US Health Care Reform: A Contemporary Example of
Goodhart’s Law?
Goodhart’s law – named after a former chief economist of the Bank of England – says that whatever social or economic indicator or other surrogate measure you adopt as a financial target ceases to be a relevant target once you have adopted it because it loses the information content it had originally. What is the [...]
Read Moree-patient stories, general, patient networks, pts as teachers, trends & principles
e-Patients Discover Unrecognized Side Effects
Detecting drug complications is too important to leave to doctors or FDA administrators. We have learned the hard way that randomized controlled trials (RCTs) don’t detect all the adverse drug effects that may be important. Far too often, serious side effects brought on by popular drugs can go unrecognized for years. A recent review in [...]
Read More
