Society for Participatory Medicine
e-patients.net blog
Patient Power
e-patient stories, e-pts resources, general, policy issues, pt/doc co-care, pts as teachers, reforming hc, trends & principles
Participatory Medicine as Revolution! Think Critically! Communicate!
My son graduated from college last year and is now in Nepal, visiting schools and writing about rural education under the Maoist regime. He was excited to tell me, when I visited him recently in India, about how a classic book on education, Pedagogy of the Oppressed by Brazilian Paulo Freire, radically influenced and inspired [...]
Read Moree-pts resources, trends & principles
Immediate data requested. Please share with breast cancer patients everywhere.
Chapter 5 of the e-Patient White Paper is E-Patients as Medical Researchers. It details how, in the absence of sufficient medical data for their cases, patients and parents have conducted extraordinary research, time after time, often stunning the medical professionals. A key sentence in Chapter 5 is “One of the great benefits of patient-initiated research [...]
Read Morekey people, net-friendly docs
Breaking News at Hematology Meeting – for Patients
Andrew Schorr is the founder of Patient Power, LLC, and shares this dispatch, his second for e-patients.net: I had a whirlwind weekend at the Moscone Center in San Francisco where I broadcast five and a half hours of live interviews with leading hematologists and hematologist/oncologists on the latest news in a variety of chronic conditions. [...]
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Patient Power: Andrew Schorr
Andrew Schorr‘s recent comment also merits a separate post: I am a 12-year leukemia survivor and very grateful to the ACOR community members who helped me numerous times along the way. I have dedicated my life to creating community online and also, in a supplementary way, on radio. But my concept of community is a [...]
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