Society for Participatory Medicine
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general, medical records, news & gossip
Bye Bye Google Health
Like so many attempts before it — drkoop.com and RevolutionHealth.com to name just two — Google has found that implementing personal health records in a meaningful way is really, really hard. So hard, in fact, that it has given up and is shuttering its Google Health service, after just 3 years being open to the [...]
Read Moregeneral, understanding statistics, Why PM
“You’re 100% alive or 100% dead at any given moment”
A recurring training topic on this blog, originally for e-patients but also for clinicians and policy people, is understanding statistics. (See posts in that category.) Not only are statistics often misinterpreted; even when they’re correctly understood, patients too often interpret a slim chance as no chance. During my illness I heard from a long-ago co-worker. [...]
Read Moree-pts resources, medical records, policy issues, pt/doc co-care, reforming hc, Why PM
Testimony submitted to the Meaningful Use workgroup (and an urgent call for citizen participation)
There’s an important call to action below. If you care about making healthcare more responsive to us, and less responsive to vendors, please read to the end. This is short. Thanks to all of you who submitted comments on this week’s post, offering feedback. Here is the PDF I submitted today, which is being distributed to [...]
Read Morehc's problem list, medical records, policy issues
What to do about “the cream of the crap”? ONC’s Adoption/Certification Workgroup meeting
I’d like your help preparing thoughts and testimony for a policy meeting I’ve been invited to attend in Washington next week. For these meetings, one needs to submit prepared remarks in advance, for the committee to digest in advance. And from what I’ve learned so far about this, there’s a lot to chew on, and [...]
Read Moreethics, hc's problem list, positive patterns, pt/doc co-care, reforming hc, Why PM
MITSS: Much-needed support after medical errors
Ten years ago this week, 11/18/99, Linda Kenney was scheduled for ankle replacement surgery. She woke up three days later in the ICU. Her chest had been cut open. She was in the hospital ten days. And nobody talked about what had happened. What had happened is that the nerve block administered to her ankle (a [...]
Read Moree-pts resources, medical records, pt/doc co-care, trends & principles
From Ted Eytan’s blog: “Now Reading: Patients actually want their entire medical record”
An important study just got my attention. Patients and clinicians in different cities were asked questions about concerns and preferences. Titled “Insights for Internists: ‘I Want the Computer to Know Who I Am’,” the study reports: (emphasis added) Patients do keep their own medical records They want access to everything in their record Privacy worries [...]
Read Morechapter reviews, general, positive patterns, pt/doc co-care, trends & principles, Why PM
Participatory Medicine around the world: the Seven Preliminary Conclusions reach India
A Google alert popped up today, saying that a participatory physician in India had cited this blog. Don’t we love it when social media let empowering information spread! It’s exactly what our founder “Doc Tom” predicted with his now-famous 1995 triangle slides: the internet gives us access to information and to each other, which puts [...]
Read Moregeneral, hc's problem list, medical records
For Want of a Surge Protector…
It seems somewhere between highly unlikely and impossible for this to happen in this day and age, but Methodist Hospital in Indianapolis had to turn away patients when a power surge took down its electronic medical records system. Yes, that’s right — our computers are down, and we can’t keep up with the paperwork backlog [...]
Read Morechapter reviews
The e-patient white paper: Seven Preliminary Conclusions
One year ago today I finished reading e-Patients: How they can help us heal healthcare, the e-patient white paper. It turned my head around because although I’d experienced excellent care in almost all ways, it showed that I as a patient have far more to contribute than I ever would have imagined. The people who [...]
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