Society for Participatory Medicine
e-patients.net blog
pew internet project
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Crowdsourcing a Survey: Health Topics
The Pew Internet & American Life Project will soon go into the field with our next health survey and we need your help. One of our core findings (8 in 10 internet users, or about two-thirds of U.S. adults, look online for health information) is based on a series of questions that is tweaked in [...]
Read Morepolicy issues, trends & principles
The Power of Data and the Power of One
I am struck, once again, by the power of data and the power of one. Carlos Rizo, Chief Imagineer of the Health Strategy Innovation Cell, posted this very intriguing tweet on May 2: The power of open data: To find problems in complicated environments, and possibly even to prevent them from emerging. Clicking through, I [...]
Read Moredemographics, trends & principles
Health 2.0 Europe: A Moveable Feast
Ernest Hemingway wrote that Paris is a moveable feast, not fixed in time or place. I think that describes great gatherings of any kind, including great conferences, which begin before the first speaker takes the stage and don’t end simply because the participants have left the building. Health 2.0 Europe began, for me, in February, [...]
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Participation Matters
In politics and in health care, participation matters as much as access. The passion we saw in the political campaigns last year is matched by the passion we see when someone is trying to save a life, find a better treatment, or just manage the health of a loved one. What are you doing in [...]
Read Moremedical records, policy issues, reforming hc
Health IT Policy: E-patients want access
What would you say to policymakers who are discussing the implementation of a national health information infrastructure? Here’s what I’d say: E-patients want access to tools and information. Many will find what they need, many will not. You can help.
Read Morepolicy issues, positive patterns
Social Media’s Promise for Public Health
Federal agencies can, and should, be the first responders to health questions. Social media can help. That’s my summary of presentations from last week’s National Conference on Health Communication, Marketing and Media conference, where I had the sense, once again, of a tribal meeting, but this one had the urgency of war council. The enemy [...]
Read Morereforming hc, trends & principles
Participatory Medicine at PdF09: Can we get a do-over?
The poli-tech tribe gathered in New York last week for the Personal Democracy Forum and, as Craig Newmark put it, welcomed “our new nerd overlords.” Esther Dyson, Jamie Heywood, Rep. Jerry Nadler (D-NY), and I were asked to take on a breakout panel entitled, “From Participatory Politics to Participatory Medicine: The Coming Revolution in Health [...]
Read Moretrends & principles
Mobile could be a game-changer – but only for those who get in the game.
Original title: Health 2.0 meets Ix: Susannah Fox’s presentation Here are my prepared remarks for the “Navigating the New Health Care Delivery System” segment at the Health 2.0 meets Ix conference (with the lines I added to respond to other themes brought out during the conference in bold) “Is Health IT the answer? Only if [...]
Read Moredemographics, news & gossip, trends & principles
Mobile, social technology and the impact on health care
Fard Johnmar interviewed me about internet adoption, the use of social technologies among minority groups, and my hope that e-patients’ “passion, knowledge, and ingenuity is brought forward no matter what else is planned for health care reform.”
Read Moredemographics
Crowdsourcing a Survey: Reassured? Overwhelmed? Eager? Confused?
The Pew Internet Project is finalizing our fall health survey and we are now in the painful cut phase. Here’s a question I’m hoping to save in a shorter form: At any point in your last search for health information online did you feel any of the following things? At any point, did you feel…?
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