Society for Participatory Medicine
e-patients.net blog
Pew Internet
shared decision making, Why PM
“They never took his sock off”: a parable of patient empowerment, resourcefulness, and literacy
Jessie Gruman’s Journal of Participatory Medicine commentary, “Evidence That Engagement Does Make a Difference,” reminded me of a talk delivered by Alice Tolbert Coombs, M.D., last September: As you listen to Dr. Coombs’s chilling story about a man who lost his foot because nobody ever took his sock off to examine it, please review Jessie’s [...]
Read Morepositive patterns
Going Viral Against HIV and STIs
The New York State Department of Health AIDS Institute, in partnership with AIDS.gov, held a one-day forum on social media, HIV, and sexually transmitted infections (STI) that turned out to be an unfiltered discussion of love, truth, and technology. Why was it so smoking hot? And is this unique to conferences (or panels) about sexual [...]
Read Morepolicy issues, pts as teachers, research issues
President’s Cancer Panel: Input, Please
What evidence would you bring to convince cancer researchers and policy makers to pay attention to how the internet is changing health and health care? That’s my challenge for the Dec. 14 meeting of the President’s Cancer Panel, “The Future of Cancer Research: Accelerating Scientific Innovation” (PDF of the agenda).
Read Morehc's problem list, patient networks, reforming hc
The Future of Health: Robots, Enchanted Objects, and Networks
I have seen the future of health and it’s networks (with apologies to Lincoln Steffens). Chronic disease is exploding in the U.S. The number of primary care health professionals is declining. Behavior change is difficult. But what are we going to do about it? Here are three ideas I’ve brought back from my travels: robots, [...]
Read Morehc's problem list, patient networks
To improve health and health care faster… (fill in the blank)
I was honored to be invited to TEDMED by the Pioneer Portfolio of the Robert Wood Johnson Foundation. Their team encouraged all attendees to complete one of three sentences: “To improve health and health care, we need to start asking…” “To improve health and health care faster, we must…” “My bold idea for transforming health [...]
Read Moretrends & principles
Twitter: filter, suggestion box, idea machine, window
On Friday I dashed off this tweet: PhD student just asked me which journals I read to stay up to date on health + tech. My answer: Twitter. It was classic RT bait and indeed it was echoed dozens of times by fellow Twitter geeks — more than any other tweet I’ve written. But I [...]
Read Morefound on the net
e-Patient Connections 2010
Kevin Kruse and his team have put together another incredible event in Philadelphia: e-Patient Connections 2010. Follow the tweets by searching for #epatcon or read the excellent summaries being written in real-time by Leigh Householder and Seth Quillin on the blog What’s Your Digital IQ? Definitely watch the curtain-raiser video, starring our own e-Patient Dave: [...]
Read Morefound on the net
The Power of Mobile (Video)
The video of my Mayo Transform 2010 speech, The Power of Mobile, is now up on the conference site as well as on YouTube. It was an honor to be part of this event. Many thanks to David Rosenman and his team for inviting me!
Read Moredemographics, trends & principles
The Power of Mobile
Prepared for Mayo Transform 2010: Thinking Differently About Health Care (video now available). Ten years ago, I wrote the Pew Internet Project’s first report on the impact of the internet on health care, calling it “The Online Health Care Revolution.” Back then, the idea that people were searching online for health information was revolutionary. All [...]
Read Moretrends & principles
E-patients, Cyberchondriacs, and Why We Should Stop Calling Names
New concepts need gimmicks. Proven concepts do not. The phenomenon of using the internet to gather and share health information is now mainstream. It’s time to change how we talk about it, revising and maybe even retiring certain terms. Carlos Rizo and I invite you (everyone!) to join our discussion on Wed. Sept. 1 at [...]
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