Society for Participatory Medicine
e-patients.net blog
Physicians
e-patient stories, general
Worst Headache of My Life Becomes Lesson About Role of Story in Health
This post and 5 minute video were published on ABC News yesterday and I want to share them with this community as well. Three months ago, at the age of 40, I had a small bleed in my brain. My story is no more special than any of your stories, but I learned something important [...]
Read Morept/doc co-care, pts as teachers, shared decision making, Why PM
Action in the face of uncertainty
Science seeks certainty. The problem in medicine is, the body is complex and our knowledge is incomplete. People who want certainty – physicians or patients – are kidding themselves. And if we expect docs to be perfect, it’s a setup for dysfunction. Sometimes I hear of patients who believe their physicians dissed a proposed or experimental [...]
Read Moree-patient stories, general, shared decision making
Jonena Relth: Participatory medicine: my first-hand account
Jonena Relth submitted this guest post to share her very positive experience with her surgeon. I was being prepped for surgery last week and my surgeon, Dr. Davies, came in to discuss the procedure. He explained to me that he had reviewed my file several times and decided that he would prefer to perform a [...]
Read Moreethics, general, policy issues, pt/doc co-care, trends & principles
Should More Doctors Participate in Social Media?
I’ve heard this sentiment more than once… “Doctors should participate more in social media. They should be Facebooking and Twittering and Tumblr-ing far more often than they do!” Houston Neal makes the case again over at The Medical Blog, suggesting that because doctors aren’t engaging in social media as much as the ordinary person, they’re [...]
Read Moremedical records, policy issues, reforming hc, Why PM
Insights on how the HITECH stimulus plan is working
In my previous post I noted that Vince Kuraitis and David Kibbe are running an excellent series, “Is HITECH Working?”* After a full year of increasing tensions, claims, and counterclaims, reading these posts has given me hope that it’s all panned out into something mortals can understand. (I’d been afraid to look!) In a day [...]
Read Moremedical records, policy issues, Why PM
Second wave of comments on Health IT safety issues
Last month I posted the testimony I submitted to the Adoption/Certification Workgroup of the Health IT Policy Committee. (I urge interested parties to review the links to other resources in that post.) Today Paul Egerman, chair of that team, circulated a preliminary draft of recommendations from that meeting. Here is my response tonight, edited a [...]
Read Morept/doc co-care, Why PM
Calling All Physicians: Support the Participatory Medicine Movement
Participatory Medicine is a new paradigm in healthcare, one that promises to enhance healthcare efficiency, transform the experience for both the patient and their providers, and improve healthcare outcomes. This cultural shift requires adaptation among healthcare professionals (including physicians) as well as patients and caregivers. And yet changing culture amongst physicians remains challenging, for a [...]
Read Moree-pts resources, positive patterns, trends & principles
Health News Review launches new site with improved e-patient training
There’s a new resource for a vital e-patient skill: reading health news responsibly. It helps us be smarter before we bring new findings to the attention of other patients and our providers – not to mention smarter for our own benefit. When “Doc Tom” Ferguson defined “e-patient” in the 1990s, “Educated” wasn’t one of his [...]
Read Moremedical records, policy issues, reforming hc, trends & principles, Why PM
What Participatory Medicine can learn from a $2,467 phone bill
Fair warning: in the weeks leading up to the October 21 launch of the Journal of Participatory Medicine, just about everything you see here is going to tie in to the society and journal. A fundamental tenet of PM is that patients (ordinary citizens, toi et moi) have more to contribute than we’ve ever thought. [...]
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