Regina

 

medical records, policy issues, pt/doc co-care, Why PM

Tell HHS: What’s the role of patient generated data in Meaningful Use?

Next Tuesday Regina Holliday and I are among those testifying to the Health IT Policy Committee’s workgroup on Meaningful Use.  Please help me decide what to submit for my testimony. My session is Panel 2:  Incorporating Patient-Generated Data in Meaningful Use of HIT. Questions: a. What is the role of patient-generated data in improving health [...]

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pt/doc co-care, Why PM

Unleash the Hot Talent: A Letter from a Patient

This is a guest post from Christine Kraft, Twitter friend @ChristineKraft. She’s a pensive, musey blogger at CocoVillage, and “wicked smaht,” as we say in Boston. She’s also the one who introduced us to Regina Holliday last year. She recognizes talent when she sees it – and here, she plays the role of patient as ingenue, [...]

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policy issues

Health data rights on CNN

Elizabeth Cohen, CNN Senior Medical Correspondent, captured the zeitgeist of the health data rights movement in today’s must-read article, Patients demand: ‘Give us our damned data’. An e-patients all-star team is quoted in the story: Jen McCabe, Regina Holliday, e-Patient Dave, Alan Viars.

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general

Regina Holliday’s “73 cents” story on NPR

An interview Regina Holliday appeared yesterday on NPR’s All Things Considered. More on this later, but I want to get it posted.

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e-patient stories, key people, reforming hc

Regina Holliday’s mural is in the BMJ

We’ve written here before about Regina Holliday (follow her blog), whose husband Fred died June 17. In today’s edition of the British Medical Journal, her mural is the picture of the week: Ted Eytan MD took the picture and posted it on Flickr. Today he sent this email to Reggie: ====== Dear Regina, You made [...]

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general, hc's problem list, medical records, policy issues

Dx: Revolting.   Rx: Revolt.

Tuesday night, endorsement #906 on HealthDataRights.org came from a Judy Beckman, who says: “I agree all the way I cannot get MY records unless I pay for MY records $1.00 per page WHY WHY these are MINE???????????” Indeed, why? Whose data is it, anyway? This spring I’ve been learning (slowly) about HIPAA – the immense [...]

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