Society for Participatory Medicine
e-patients.net blog
Robert Wood Johnson Foundation
policy issues, reforming hc
Michael Millenson: Will health reform move patient-centeredness to center stage?
Update 12:41 pm: fixed the first link. Michael Millenson, whom we welcomed to SPM in December with his first post here, submits this, about his latest work: How has listening to the patient’s voice grown from an ethical demand of the patient rights movement into a series of specific, measurable behaviors? That question, and issues [...]
Read Moremedical records, policy issues, Why PM
A glimpse of OpenNotes findings: “Patients are overwhelmingly interested”
“Patients are overwhelmingly interested in gaining rapid access to their notes … doctors have not experienced significant disruptions to their work.” Hear hear! That’s from a new commentary published Monday in Modern Healthcare about the OpenNotes project, in which patients have full access to their doctor’s visit notes. We’ve written about it numerous times, dating back to our [...]
Read Morehc's problem list, patient networks
To improve health and health care faster… (fill in the blank)
I was honored to be invited to TEDMED by the Pioneer Portfolio of the Robert Wood Johnson Foundation. Their team encouraged all attendees to complete one of three sentences: “To improve health and health care, we need to start asking…” “To improve health and health care faster, we must…” “My bold idea for transforming health [...]
Read Moree-patient stories, key people
Participant-Entrepreneurs: Innovating Toward Better Health
Nikolai Kirienko, Crohnology.MD Project Director, is setting a new standard for transparency in research and innovation as he blogs about his work with Project HealthDesign: On days where I could have benefited from the feedback of [Observations of Daily Living] the most, I was the least likely to be recording them. Why? On the worst [...]
Read Morept/doc co-care, Why PM
What would a checklist for patients look like?
This springs up from a Twitter discussion this morning. It’s Atul Gawande’s fault, for his book “Checklists.” :-) Forward-thinking clinicians are doing it; participatory patients should to. Let’s get to work.
Read Morepositive patterns
Designing for Better Health
This is a banner week for people who think good design contributes to better health. On Monday, DiabetesMine and the California HealthCare Foundation launched the 2010 DiabetesMine Design Challenge. Last year the contest garnered more than 150 entries and awarded a grand prize, a “most creative” prize, and a kids’ category prize. I can’t wait [...]
Read Moremedical records, policy issues, reforming hc, trends & principles
“Concern that sharing information with patients may cause sustained psychological distress is probably unfounded”
Cross-posted, with prolog, from the blog of Ted Eytan MD. Yesterday the Institute for Healthcare Improvement’s “WIHI” series hosted a terrific webcast on the Open Notes project that’s being funded by the Robert Wood Johnson Foundation. (I need to dig up the link to the event’s archive, but I’m in a hurry.) Speakers were Dr. [...]
Read Moree-patient stories, hc's problem list, news & gossip, policy issues, reforming hc
“No political power center for regular people”
in health reform
Aliya Sternstein writes for NextGov, a site devoted to “technology and the business of government.” We spoke last week for her piece about the White House’s use of social media. There are some people who, when you speak with them, the conversation goes to new places. This was one of those times.
Read More
