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	<title>e-Patients.net &#187; Slide Transition</title>
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	<itunes:summary>because health professionals can&#039;t do it alone</itunes:summary>
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		<title>&#8220;Give us our data&#8221;:<br />my talk at the NeHC board meeting--e-Patient Dave</title>
		<link>http://e-patients.net/archives/2009/06/give-us-our-data-my-talk-at-the-nehc-board-meeting.html</link>
		<comments>http://e-patients.net/archives/2009/06/give-us-our-data-my-talk-at-the-nehc-board-meeting.html#comments</comments>
		<pubDate>Sun, 07 Jun 2009 03:22:41 +0000</pubDate>
		<dc:creator>e-Patient Dave</dc:creator>
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		<guid isPermaLink="false">http://e-patients.net/?p=2585</guid>
		<description><![CDATA[Last Tuesday, June 2, I was on a consumer panel at a board meeting of the National eHealth Collaborative. This is a heady group to be addressing; as this press release says,  nine of these people are on the advisory committees that are working directly with David Blumenthal, Obama&#8217;s National Coordinator for Health IT, to [...]]]></description>
			<content:encoded><![CDATA[<p>Last Tuesday, June 2, I was on a consumer panel at a board meeting of the <a href="http://www.nationalehealth.org/" target="_blank">National eHealth Collaborative</a>. This is a heady group to be addressing; as <a href="http://www.nationalehealth.org/" target="_blank">this press release</a> says,  nine of these people are on the advisory committees that are working directly with David Blumenthal, Obama&#8217;s National Coordinator for Health IT, to set policy and standards.</p>
<p><span id="more-2585"></span>My deepest, sincerest thanks to <a href="http://www.consumersunion.org/about/2006/11/steve_findlay.html" target="_blank">Steve Findlay</a> of Consumers Union, who invited e-patients.net to be on this panel. What a radical idea: have a consumer on a consumer panel! It&#8217;s so good to see the skies opening in this way.</p>
<p>The topic was whether &#8220;consumer pull&#8221; would encourage healthcare providers to adopt electronic medical record systems (EMRs). (Like, if you and I keep asking our doctors and hospitals to let us see our data online, will they be more likely to get off their butts and GET our data online??)</p>
<p>All I can say is, if I have anything to do with it, consumers (that&#8217;s you) will be <em>clamoring</em> to see their medical records, both to check their accuracy and for the reason I sent my data to Google Health in the first place: to get involved in their care, to be responsible, to participate.</p>
<p>Go thou into the wilderness and clamor for access!</p>
<p>Here are the slides I used, with a few more added to make it a self-running presentation. Some of the text is small, so take it to full screen:</p>
<div style="width: 425px; text-align: left;"><a style="font:14px Helvetica,Arial,Sans-serif;color: #0000CC;display:block;margin:12px 0 3px 0;text-decoration:underline;" title="e-Patient Dave's presentation to NeHC board June 2 2009" href="http://www.slideboom.com/presentations/73871/e-Patient-Dave%27s-presentation-to-NeHC-board-June-2-2009">e-Patient Dave&#8217;s presentation to NeHC board June 2 2009</a><object classid="clsid:d27cdb6e-ae6d-11cf-96b8-444553540000" width="425" height="370" codebase="http://download.macromedia.com/pub/shockwave/cabs/flash/swflash.cab#version=6,0,40,0"><param name="id" value="onlinePlayer" /><param name="allowScriptAccess" value="always" /><param name="quality" value="high" /><param name="bgcolor" value="#ffffff" /><param name="allowFullScreen" value="true" /><param name="flashVars" value="title=e-Patient Dave's presentation to NeHC board June 2 2009&amp;url=http://www.slideboom.com/presentations/73871/e-Patient-Dave%27s-presentation-to-NeHC-board-June-2-2009&amp;mode=0&amp;idResource=73871&amp;siteUrl=http://www.slideboom.com&amp;embed=1&amp;startAuto=0&amp;autoReplay=0&amp;autoOpenShareScreen=1" /><param name="src" value="http://www.slideboom.com/player/player.swf?id_resource=73871" /><embed id="onlinePlayer" type="application/x-shockwave-flash" width="425" height="370" src="http://www.slideboom.com/player/player.swf?id_resource=73871" flashvars="title=e-Patient Dave's presentation to NeHC board June 2 2009&amp;url=http://www.slideboom.com/presentations/73871/e-Patient-Dave%27s-presentation-to-NeHC-board-June-2-2009&amp;mode=0&amp;idResource=73871&amp;siteUrl=http://www.slideboom.com&amp;embed=1&amp;startAuto=0&amp;autoReplay=0&amp;autoOpenShareScreen=1" allowfullscreen="true" bgcolor="#ffffff" quality="high" allowscriptaccess="always"></embed></object></p>
<div style="font-size: 11px; font-family: tahoma,arial; height: 26px; padding-top: 2px;">View <a style="color: #0000CC;" href="http://www.slideboom.com">more presentations</a> or <a style="color: #0000CC;" href="http://www.slideboom.com/upload">Upload</a> your own.</div>
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<p>The panel was videotaped. Here&#8217;s my talk. The sequence of slides (for instance the opening &#8220;takeaways&#8221;) is a little different from the above slides, but the flow is essentially the same.<br />
<embed src="http://blip.tv/play/AYGH2jmX20w" type="application/x-shockwave-flash" width="425" height="370" allowscriptaccess="always" allowfullscreen="true"></embed><p/>
For reference, here&#8217;s the full unedited video of the hour-long testimony including the other speakers. My portion starts at 34:09.<br />
<a href="http://web.1.c3.audiovideoweb.com/1c3web3505/NeHC/NatHealth 03.wmv ">Full video of consumer panel at NeHC board, June 2, 2009</a></p>
<p>The other panelists were phenomenal; I learned a ton from their expert observations. Some of it was over my head until I listened a couple of times; they have years of experience in these policy discussions.  All I know is, I want us to have access to our own damn data. :–)</p>
<p><em>By the way, a big thank-you to SlideBoom.com, the free service that converted my slides for posting here, including my animations and slide transitions, which cause fits for most such services. Good tool!<br />
</em></p>
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