Society for Participatory Medicine
e-patients.net blog
Social Networking
net-friendly docs, patient networks
Examples, please: peer-to-peer healthcare
I’m writing an article and would love to tap into this community’s knowledge. I know of a few examples of clinical practices using Facebook and Twitter to connect with patients, such as MacArthur OB/GYN, but I’d love to learn about other examples, especially ones which use social networking tools to connect patients and caregivers with [...]
Read Morefound on the net
ISO: Randomized Trials
I received an email the other day containing the following question: Are you aware of any randomized trials – in progress, or published – that examined the impact of social networking web 2.0, etc. on patient-level variables (e.g., improved rates of preventive health care, cancer screening, diabetes care, etc)? My answer: I haven’t done a [...]
Read Morepts as teachers
What can surgeons learn from patients?
I’m going to be on a panel at the American College of Surgeons 96th Annual Clinical Congress on October 5 in Washington, DC. The session title is pretty provocative: To Tweet or Become Extinct?: Why Surgeons Need to Understand Social Networking and my part of it uses the “e” word that I recently tried to [...]
Read Moree-pts resources, hc's problem list, policy issues, trends & principles, Why PM
Social media and healthcare: hospitals lead
A signal moment has happened: When a major business authority with no history in healthcare speaks up about a shift in the wind, it’s worth noting. And this time it’s a great sign for participatory medicine, because the news is that hospitals are engaging with patients. My company’s been working with hospitals the last few [...]
Read Moregeneral
My Right to Data, Happiness, and a Long and Healthy Life
“To alienate [patients] from their own decision making is to change them into objects.” – P. Freire, Pedagogy of the Oppressed The newly drafted Declaration of Health Data Rights, created by patient advocates, caregivers, health care professionals, technology and policy experts, and entrepreneurs (in some cases, all attributes in the same person), states that its [...]
Read Moree-patient stories, e-pts resources, general, policy issues, pt/doc co-care, pts as teachers, reforming hc, trends & principles
Participatory Medicine as Revolution! Think Critically! Communicate!
My son graduated from college last year and is now in Nepal, visiting schools and writing about rural education under the Maoist regime. He was excited to tell me, when I visited him recently in India, about how a classic book on education, Pedagogy of the Oppressed by Brazilian Paulo Freire, radically influenced and inspired [...]
Read More
