Spm

 

general

Join SPM Newsletter Team as Editor and Bring Real News to Members!

The Society of Participatory Medicine is currently searching for a Newsletter Editor. Is that you?? The SPM Newsletter is an important communication mechanism. The goal of the Newsletter is to inform members about current events, provide updates on SPM activities, and share news felt to be relevant for members and supporters. The Newsletter Editor plays a critical role in […]

Read More
general

Participatory Medicine Learning Exchange: How Are We Moving the Needle?

We are each individually advancing the participatory medicine movement in our day-to-day lives and interfaces with healthcare and/or our work. Understanding the work we are conducting within our individual silos can help us learn from one another, allow us to build upon ideas, forge collaborations, provide a forum for feedback and suggestions, and ideally avoid […]

Read More
general

We’re partnering to support The Big Heist!

The Society of Participatory Medicine (SPM) is excited to announce that we’re partnering with The Big Heist to accelerate building a Health 3.0 world, where patients actively participate and are empowered to control and improve their care. The Big Heist will be a feature film—healthcare’s The Big Short + The Daily Show + Super Size […]

Read More
general, Patient Conference Participation

Sips with the Society: SPM Receptions at Health 2.0 and Connected Health Summit

As the sweet days of summer 2016 start to wane, it’s time to make plans to attend key fall conferences. This year, the Society for Participatory Medicine is hosting Sips With The Society – meet and great receptions at Health 2.0 in Santa Clara and the Connected Health Symposium in Boston. If you’re attending either […]

Read More
general, policy issues, positive patterns, pt/doc co-care, trends & principles

OpenNotes hits TEN MILLION patient level

As regular readers know, for years we’ve been blogging here about OpenNotes, in which patients and their designated caregivers can read every word their clinicians write, so they can be more informed. The OpenNotes tagline, “Doctors and patients on the same page,” is no joke: I was one of the subjects in the study, and I’ve […]

Read More
pt/doc co-care, reforming hc

How can we cope with uncertainty?

We’ve written often about uncertainty, which is a recurring challenge in medicine and especially in participatory medicine, where issues of relationship and decisions are core. Some doctors have told me they were trained to display certainty even when things aren’t sure, and many patients (in my experience) want certainty about their diagnoses, or at least want their clinicians to […]

Read More
key people, patient networks, positive patterns, pts as teachers, social media, Why PM

Teaching Health Communication with Participatory Medicine Highlights

In the Spring of 2016 I had the opportunity to teach the course New Media and Health Communication for an undergraduate class at The College of New Jersey. The class, designed by Dr. Yifeng Hu, already included an introduction to participatory medicine and patient participation in their own healthcare. With the help of numerous colleagues from the Society for […]

Read More
general, Patient Conference Participation, positive patterns, trends & principles

Health 2.0: first conference to offer Patient Activist awards. Vote!

Voting ends Sunday July 31 Patient activists who attend conferences know that it’s been a long climb to get patient voices welcomed. The #PatientsIncluded movement has been around for years, making small dents, but Health 2.0 is one of the best: while they don’t provide stipends to cover travel costs, they admit patients and caregivers to […]

Read More
hc's problem list, medical records, PM Tech

Peter Elias: a physician experiences a portal from the family side, and… #fail

Peter Elias MD (in photo at left) is a member-at-large on the board of our Society for Participatory Medicine. See his earlier posts here. Particularly relevant is his Proposal for a TRULY patient-centered medical record, The experience he recounts here, as a caregiver of a family member trying to partner with her providers, fell far short […]

Read More
general

OpenNotes on stage at live Washington Post event

Tuesday morning in Washington, the Post hosted a 2-1/2 hour event on improving healthcare, with numerous speakers on several topics. Of special interest to SPM is this 26 minute segment that includes OpenNotes, which we’ve often written about. OpenNotes director Tom Delbanco is one of the three speakers. He describes the historic origin of OpenNotes and […]

Read More