Chilmark: “Where is the consumer in HIEs?”
As we adopt new technology NOW is the time to think strategically: “As I make my next move, where do I end up? How am I positioned for the next step?” Patients have a lot at stake in adoption of Health Information Exchanges (HIEs). Chilmark Research has posted a good summary of how we patients (you, your mother) are not well supported yet by most HIE vendors: “Not a pretty picture.” Well worth a read.
Second wave of comments on Health IT safety issues
Last month I posted the testimony I submitted to the Adoption/Certification Workgroup of the Health IT Policy Committee. (I urge interested parties to review the links to other resources in that post.) Today Paul Egerman, chair of that team, circulated a preliminary draft of recommendations from that meeting. Here is my response tonight, edited a bit for clarity.
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The Invisible Stakeholder:
Why America Needs a Patient-in-Chief
The following is the proposal I submitted Tuesday, to speak at O’Reilly / TechWeb’s Government 2.0 Expo, May 25–27 in Washington.
______________________________
The Invisible Stakeholder:
Why America Needs a Patient-in-Chief
“These are exciting and very promising times for the widespread application of information technology to improve the quality of healthcare delivery, while also reducing costs, but there is much yet to do, and in my comments I want to note especially the importance of the resource that is most often under-utilized in our information systems – our patients.”
– Charles Safran MD, testimony to the House Ways & Means subcommittee on health [Emphasis added]
Quite current, yes? No: Dr. Safran said those words in June 2004.1 And not much has changed.
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Give patients (that’s you) access to all their (your) data – so they can help
Cross-posted from my website, ePatientDave.com – the happy home for my new business!
I’ve just returned from Toronto, where I gave the opening keynote at the Medicine 2.0 Congress. It was titled “Gimme My Damn Data,” which is an unconventional title for an opening address, but I meant it. Here’s why.
A new world of participatory medicine has been growing for years, largely unnoticed. In this new world, healthcare is not a one-way street: empowered patients are engaged in their care, actively collaborating with their physicians, sharing responsibility for their care.
The healthcare providers (doctors, nurses, etc) are still the providers, but the patients share in both the knowledge and the responsibility for how it all turns out.
And, certainly, the decision making.
This requires that patients have access to their medical data. (Whose data is it, anyway?)
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white paper
e-Patients:
How They Can Help Us Heal Healthcare
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- Dennis (Investigator/Negotiator) at Medical BillDog on Doctors Say One Thing, Patients Hear Another
- Making Health Data Sing (Even If It’s A Familiar Song) on Making Health Data Sing (Even If It’s A Familiar Song)
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