Society for Participatory Medicine
e-patients.net blog
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Crowdsourcing a Survey: Health Topics
The Pew Internet & American Life Project will soon go into the field with our next health survey and we need your help. One of our core findings (8 in 10 internet users, or about two-thirds of U.S. adults, look online for health information) is based on a series of questions that is tweaked in [...]
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Crowdsourcing a Survey: Reassured? Overwhelmed? Eager? Confused?
The Pew Internet Project is finalizing our fall health survey and we are now in the painful cut phase. Here’s a question I’m hoping to save in a shorter form: At any point in your last search for health information online did you feel any of the following things? At any point, did you feel…?
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41% of Adults are “Activated Patients”
The Center for Studying Health System Change has released another information-packed report, How Engaged Are Consumers in Their Health and Health Care, and Why Does It Matter. The researchers created a “Patient Activation Measure” and apparently 41% of adults are what we might call e-patients (empowered, equipped, etc.).
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Online Patient Groups
Laura Landro’s column in the Wall Street Journal features a series of profiles of online patient groups like MPDinfo.org and ACOR.org, among others. Now seems like the right time to post some data that I’ve been holding back, waiting for the right opportunity to talk about it publicly.
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