Society for Participatory Medicine
e-patients.net blog
hc's problem list, reforming hc, social media
What’s your health care dream?
#whatifhc in #TheWalkingGallery Note: This is two posts in one — scroll down to read Regina Holliday’s point of view. From Susannah Fox: For me, Twitter is a free-wheeling space where people dance with ideas. Anyone is welcome to jump into the spotlight and take a twirl. That’s how I see hashtags – [...]
Read Moregeneral, others' e-patient stories
Elaine Schattner: Don Berwick, Head of CMS, on the Value of Patient-Centered Care
Usually we talk about participatory medicine at the level of the individual care relationship, but increasingly we’re seeing the need to “Design and create a safe, decent, patient centered healthcare system.” And as we start to get real about that – concrete, tangible change– I’ve heard people wonder, “What do they mean by patient-centered?” Thanks [...]
Read Moree-pts resources, patient networks, positive patterns, pt/doc co-care, trends & principles, Why PM
Announcing: the e-Patient White Paper, in Spanish
It’ s been a long time coming, but it’s here! From the English “e-Patients: How they can help us heal health care,” you can now click to download the Spanish e-Pacientes: cómo nos pueden ayudar a mejorar la salud. To read this post in Spanish, click here. From the editors of the Spanish edition, Elia Gabarrón and Luis Fernández [...]
Read Morenet-friendly docs, patient networks
Examples, please: peer-to-peer healthcare
I’m writing an article and would love to tap into this community’s knowledge. I know of a few examples of clinical practices using Facebook and Twitter to connect with patients, such as MacArthur OB/GYN, but I’d love to learn about other examples, especially ones which use social networking tools to connect patients and caregivers with [...]
Read Moreethics, general, policy issues, pt/doc co-care, trends & principles
Should More Doctors Participate in Social Media?
I’ve heard this sentiment more than once… “Doctors should participate more in social media. They should be Facebooking and Twittering and Tumblr-ing far more often than they do!” Houston Neal makes the case again over at The Medical Blog, suggesting that because doctors aren’t engaging in social media as much as the ordinary person, they’re [...]
Read Moretrends & principles
Twitter: filter, suggestion box, idea machine, window
On Friday I dashed off this tweet: PhD student just asked me which journals I read to stay up to date on health + tech. My answer: Twitter. It was classic RT bait and indeed it was echoed dozens of times by fellow Twitter geeks — more than any other tweet I’ve written. But I [...]
Read Moree-patient stories, pt/doc co-care, pts as teachers, Why PM
e-Patients, send video messages to @Berci’s med students
If you haven’t found him yet, Bertalan Meskó is one of the best new-generation doctors making the most of social media. While he was still a med student his ScienceRoll blog won Blogger’s Choice in 2007, and last month it won Medgadget’s prestigious Best Medical Technologies/Informatics Weblog for the second year in a row. @Berci, [...]
Read Morept/doc co-care, Why PM
What would a checklist for patients look like?
This springs up from a Twitter discussion this morning. It’s Atul Gawande’s fault, for his book “Checklists.” :-) Forward-thinking clinicians are doing it; participatory patients should to. Let’s get to work.
Read Moree-patient stories
ER tweet: “If my husband dies, I’m going to go [eff]ing ballistic”
When Benn Rosales had a heart attack in December, his wife Lani, a very active member of the Twitterati, tweeted throughout the experience. Afterward she thought to compile those tweets as a record of Benn’s e-patient experience: “this hospital is understaffed and we’re being sh*t on because of it. if my husband dies i’m going [...]
Read Morept/doc co-care, Why PM
Unleash the Hot Talent: A Letter from a Patient
This is a guest post from Christine Kraft, Twitter friend @ChristineKraft. She’s a pensive, musey blogger at CocoVillage, and “wicked smaht,” as we say in Boston. She’s also the one who introduced us to Regina Holliday last year. She recognizes talent when she sees it – and here, she plays the role of patient as ingenue, [...]
Read More
