Society for Participatory Medicine
e-patients.net blog
Wikipedia
pt/doc co-care, pts as teachers, shared decision making, Why PM
Action in the face of uncertainty
Science seeks certainty. The problem in medicine is, the body is complex and our knowledge is incomplete. People who want certainty – physicians or patients – are kidding themselves. And if we expect docs to be perfect, it’s a setup for dysfunction. Sometimes I hear of patients who believe their physicians dissed a proposed or experimental [...]
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Health Geek Tip: Abstracts are ads. Read full studies when you can.
Ivan Oransky, executive editor of Reuters Health, provided excellent evidence yesterday regarding the need to look past abstracts of journal articles if accuracy matters to you:
Read Moree-pts resources, policy issues, positive patterns, pt/doc co-care, reforming hc, trends & principles, Why PM
Our Bodies Ourselves: support this pioneer of empowered, participatory healthcare
Some people think e-patient ideas are new. They’re not. I’d like to give credit to a noble antecedent, and ask for your support. Shortly after I discovered this blog (February ’08) I recognized two strong precedents from earlier in my life: Dr. Benjamin Spock’s Baby Book (opening words: “Trust yourself. You know more than you think you do,”) and Our Bodies, [...]
Read Morepatient networks, positive patterns, pt/doc co-care, trends & principles, Why PM
#WhyPM?
Note: if you do not use Twitter an explanation of this post’s title may be in order. #WhyPM is the Twitter hashtag we have been using collectively to announce the launch of the Journal of Participatory Medicine and to mention topics of interest from the Journal and the Internet. So what is Participatory Medicine? Simply [...]
Read Moree-patient stories, general, pt/doc co-care, Why PM
Call for Submissions: Grand Rounds next week is on Participatory Medicine
We have wonderful news: next week Grand Rounds is devoted to Participatory Medicine. We are asking for your personal stories of how patient engagement has worked for you. It’s being hosted by Robin, the incredible patient who runs the Survive The Journey blog. She’s a member of the Society for Participatory Medicine (are you? Join) [...]
Read Moremedical records, policy issues, positive patterns, pt/doc co-care, trends & principles
e-Patients: a high tech group wants our input (gasp!) on connected health. DO IT!
I’m not making this up; it’s a wonderful thing. MassMEDIC, the Massachusetts Medical Device Industry Council, is looking at the future of “connected health” devices. They’ve got a survey that’s been given to all kinds of industry and policy people, and now, blow me down, they want patients to take the survey too. DO IT! [...]
Read Morepositive patterns
Shared Kismet: Wikipedia and the NIH
The National Institutes of Health hosted a Wikipedia Academy today to train scientists, communications staff, and other NIH staffers in how to contribute to what has become a top source for health information in the U.S. (For more details, please see the NIH press release, a Wikipedia project page, and a Wikimedia Blog post.) The [...]
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Participatory Medicine: What Is It For You?
As the meme is now firmly accepted, I thought we ought to have another round of definition crowdsourcing. If you use the term please stop here for a minute and let us know what it means to you. I will summarize the responses and use the results to update the wikipedia page on Participatory Medicine. [...]
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