e-Patients, send video messages to @Berci’s med students

March 19, 2010 · Filed Under Why PM, e-patient stories, pt/doc co-care, pts as teachers · 5 Comments

If you haven’t found him yet, Bertalan Meskó is one of the best new-generation doctors making the most of social media. While he was still a med student his ScienceRoll blog won Blogger’s Choice in 2007, and last month it won Medgadget’s prestigious Best Medical Technologies/Informatics Weblog for the second year in a row. @Berci, as he’s known on Twitter, provides a glimpse of what healthcare will be like in the coming decades.

Now that he’s become an MD and is teaching, he’s taking it to the next step, inviting e-patients to talk directly to his students via YouTube. He posted an invitation on his site, and he welcomes cross-posting it here and elsewhere. Upload to YouTube, tagged with “med20course.” (That’s a zero after the 2.)

Here’s famed SixUntilMe diabetes blogger Kerri Sparling’s contribution. It’s got almost 800 views already.

Tags: blog, Blogger, Decades, diabetes, doctors, Glimpse, Invitation, Kerri, Med Student, Med Students, Medgadget, Medical Technologies, New Generation, Send Messages, Sparling, Twitter, Upload, Video Messages, Weblog, Youtube

Superheroes and rock stars at the Institute of Medicine

October 14, 2009 · Filed Under Why PM · 30 Comments

The Institute of Medicine’s recent workshop on building a rapid-learning system for cancer became, for an hour or so, a seminar on participatory medicine. Read more

Tags: Abernethy, ACOR, Afterthought, Annals Of Internal, Annals Of Internal Medicine, Chordoma, Clinical Trials, Dartmouth, Denial Anger Bargaining, Emory, Georgetown Md, Gilles Frydman, health information, Institute Of Medicine, Jamie Heywood, Md Anderson, Myspace, Oncology, Optimists, Participation Data, Patient Participation, Paul Wallace, Podium, Radicals, Raising Money, Rock Stars, Simone, Superheroes, Transparency, Vanderbilt, Youtube

Question For President Obama

June 28, 2009 · Filed Under general · 11 Comments

Guest Post: Cindy Throop from http://Open-Health.us, a participatory forum dedicated to effectively including patients in the discussion, planning, and evaluation of health care reform.

A lot of money is about to be invested in health care, particularly into health information technology (HIT). Does this mean that when your health care provider(s) implement electronic medical records, you will have quick and easy (and free) access to your health data?

Ummm, not necessarily.

It may seem like a no-brainer, but we need to make sure President Obama knows that we – as patients, future patients, caregivers, citizens, and taxpayers – really care about having access to our health information. On Wednesday, July 1, 2009, Obama will be holding an online town hall meeting on health care reform to answer some common questions. People can submit questions via Facebook, YouTube, and Twitter (twitter hashtag: #WHHCQ)

President Obama will answer common questions. If enough of us ask, maybe we will get a verbal commitment from Obama to support our health data rights.

Here are a couple of twitter examples:

Obama, will #hcreform support my right to access and use #myhealthdata ? #WHHCQ

Hi Prez Obama! Will #hcreform support humans’ access to their own health data, kinda like how they access their pet’s data? #WHHCQ

Tags: Cindy, Citizens, Electronic Medical Records, Facebook, Free Access, Health Care Provider, Health Care Reform, Health Data, Health Information Technology, Health Org, July 1, No Brainer, Obama, Own Health, Support Humans, Taxpayers, Throop, Town Hall, Twitter, Verbal Commitment, Youtube

In Iran and in the US Health Care System,
Citizens’ Access to Computable Data
Frees Everything!

June 22, 2009 · Filed Under general · 13 Comments

Dedication: This post is dedicated to Regina Holliday and to the memory of her husband, Frederick Allen Holliday, who passed away on June 17. Regina’s story has energized many of us to create the Declaration of Health Data Rights we are asking you to endorse on a website or via twitter.

Definition: Data in a computable format means that its contents can be understood and acted upon by a computer software program. Data on the Internet is increasingly in the form of electronic standards, such as XML (Extensible Markup Language), that allows sharing between computer systems and some action or actions to take place without human data entry being necessary. For example, if a patient’s prescribed medications can be automatically assessed to determine if there are potential risky interactions, then that data is computable. Similarly, people upload video from their cell phone to YouTube because these individual video streams are computable.

Tags: Action Gt, Background Image Url, Background Url, Computable, Computer Software Program, Consensus, Data Element, Data Elements, Data Entry, Data Flows, Democracy, Demonstrators, Dictatorship, Div Class, Electronic Health Record, Electronic Standards, Enemies, Extensible Markup Language, Frederick Allen, Gm, Health Care System, Health Data, Healthcare Reform, Healthcare System, Helicopters, Holliday, Horizon, Iranian Government, Iranian Leaders, Mass Fear, Medical Care, Protest Movement, Repercussions, Right Position, Roadblocks, Style Type, Tehran, Text Messaging, Tight Control, Trumps, Twitter, Video Streams, Youtube