<?xml version="1.0" encoding="UTF-8"?><rss version="0.92">
<channel>
	<title>e-Patients.net</title>
	<link>http://e-patients.net</link>
	<description>because health professionals can&#039;t do it alone</description>
	<lastBuildDate>Wed, 08 Feb 2012 16:59:49 +0000</lastBuildDate>
	<docs>http://backend.userland.com/rss092</docs>
	<language>en</language>
	

	<item>
		<title>Helen Palmquist: Supporting my cyber-sisters with words of hope--Kathleen O'Malley</title>
		<description><![CDATA[Guest blogger Helen Palmquist is a member of the Ovarian Cancer National Alliance support community, hosted by Inspire. She lives in suburban Chicago. I was diagnosed with ovarian cancer at age 41, in the pre-Web days of 1987. From my hospital bed after my first surgery, I phoned two people whom I had heard were [...]]]></description>
		<link>http://e-patients.net/archives/2012/02/helen-palmquist-supporting-my-cyber-sisters-with-words-of-hope.html</link>
			</item>
	<item>
		<title>Alex Albin: Why patients aren&#8217;t managing their care (Healthcare--e-Patient Dave</title>
		<description><![CDATA[A note on the SPM member listserv from Alexandra Albin, frequent guest contributor here - &#8212;&#8212;&#8212;- Forwarded message &#8212;&#8212;&#8212;- From: Alexandra Albin Here is an article I came across with some relevance to S4PM. 4 Reasons why Patients aren&#8217;t managing their care Happy Reading! The two pieces that caught my attention: 1-patient engagement theories have not been [...]]]></description>
		<link>http://e-patients.net/archives/2012/02/alex-albin-why-patients-arent-managing-their-care-healthcare.html</link>
			</item>
	<item>
		<title>What’s your health care dream?--Susannah Fox</title>
		<description><![CDATA[&#160; #whatifhc in #TheWalkingGallery &#160; Note: This is two posts in one &#8212; scroll down to read Regina Holliday&#8217;s point of view. From Susannah Fox: For me, Twitter is a free-wheeling space where people dance with ideas. Anyone is welcome to jump into the spotlight and take a twirl. That&#8217;s how I see hashtags – [...]]]></description>
		<link>http://e-patients.net/archives/2012/02/what%e2%80%99s-your-health-care-dream.html</link>
			</item>
	<item>
		<title>New editorial series in JoPM asks the tough questions--Kathleen O'Malley</title>
		<description><![CDATA[A new Journal of Participatory Medicine tradition has just launched. Our monthly editorial series will tackle the toughest questions of participatory medicine, from both the patient and the provider side. The first installment, by Joe and Terry Graedon, is titled &#8220;Participatory Medicine: Must You Be Rich to Participate?&#8221; &#8212; read on at http://www.jopm.org/?p=2342. And by [...]]]></description>
		<link>http://e-patients.net/archives/2012/02/new-editorial-series-in-jopm-asks-the-tough-questions.html</link>
			</item>
	<item>
		<title>Katie Matlack: iOS medical peripherals: convenient and connected--Kathleen O'Malley</title>
		<description><![CDATA[This guest post from Katie Matlack (reposted from the free site Software Advice) launches a new section of e-Patients.net: &#8220;PM Tech.&#8221; This special branch of e-patient resources is gaining importance as smartphones and tablets become ever more mainstream. Devices that were once just toys for techies are now the favorite tools of many ex-technophobes &#8212; [...]]]></description>
		<link>http://e-patients.net/archives/2012/02/katie-matlack-ios-medical-peripherals-convenient-and-connected.html</link>
			</item>
	<item>
		<title>Mayo Proposal: Make Med Students Understand Costs?--e-Patient Dave</title>
		<description><![CDATA[Corrected 6:50 pm &#8211; the Medical Professionalism Blog belongs to the ABIM Foundation, not to the Board. ABIM is the American Board of Internal Medicine, one of the two U.S. organizations that certifies internal medicine physicians. Their The ABIM Foundation&#8217;s Medical Professionalism blog just posted a new item, &#8216;Extremist Proposal Shocks the Medical Establishment. Here&#8217;s the lead: (caps &#38; [...]]]></description>
		<link>http://e-patients.net/archives/2012/01/make-med-students-understand-costs-mayo-proposal-shocks.html</link>
			</item>
	<item>
		<title>Opening the Door to Closeted Science--Sarah Greene</title>
		<description><![CDATA[NOTE: We&#8217;re happy to welcome back Sarah Greene, one of the founding members in 2009 of SPM and its journal. She left a while ago for London, where she&#8217;s continued her work at the leading edge of thought about medical knowledge.  Sarah is ahead of most of us. Only in the past six months did [...]]]></description>
		<link>http://e-patients.net/archives/2012/01/opening-the-door-to-closeted-science.html</link>
			</item>
	<item>
		<title>&#8220;I have a right to my damn data&#8221;: Hugo Campos in the Mercury News--e-Patient Dave</title>
		<description><![CDATA[Well, SPM&#8217;s resident ICD patient is getting quite a lot of attention these days! First a feature in MIT Technology Review in November, then his TEDx video was released this month, leading to a spot on NPR&#8217;s On The Media on 1/20, and now he&#8217;s on the front page of Silicon Valley&#8217;s newspaper &#8211; a 900 [...]]]></description>
		<link>http://e-patients.net/archives/2012/01/i-have-a-right-to-my-damn-data-hugo-campos-in-the-mercury-news.html</link>
			</item>
	<item>
		<title>TED talk on doctors&#8217; mistakes--Kathleen O'Malley</title>
		<description><![CDATA[TED.com has posted physician Brian Goldman&#8217;s very engaging presentation from November 2011, &#8220;Doctors make mistakes: can we talk about that?&#8221; Goldman discusses the impossibly high expectations we all have of doctors &#8212; doctors themselves especially &#8212; and calls for a reality check. Using personal anecdotes, he argues that medical culture must change to allow physicians [...]]]></description>
		<link>http://e-patients.net/archives/2012/01/ted-talk-on-doctors-mistakes.html</link>
			</item>
	<item>
		<title>&#8220;That means there is hope&#8221; &#8211; Atul Gawande at #CISummit--e-Patient Dave</title>
		<description><![CDATA[Edits made in the discussion at bottom, 1/27. Quick post from the media table at today&#8217;s Medicare Innovation Summit: Deservedly famed surgeon &#38; author Atul Gawande just put together a bunch of thoughts into a potent summary. Paraphrasing from memory: There is a bell curve for quality &#8211; a wide gap between the best care [...]]]></description>
		<link>http://e-patients.net/archives/2012/01/that-means-there-is-hope-atul-gawande-at-cisummit.html</link>
			</item>
	<item>
		<title>Medical Devices: Another take on &#8220;We want Access to our Damm Data&#8221;--e-Patient Dave</title>
		<description><![CDATA[Another potent guest post by SPM member Alexandra Albin, @MsAxolotl. If this doesn&#8217;t give you a sense of who is &#8220;the ultimate stakeholder&#8221; in health matters, nothing will. Remember, &#8220;patient&#8221; is not a third person word. Your time will come. A conversation on the SPM listserve was started by Joleen Chambers, @JjrkCh, a patient advocate [...]]]></description>
		<link>http://e-patients.net/archives/2012/01/medical-devices-another-take-on-we-want-access-to-our-damm-data.html</link>
			</item>
	<item>
		<title>Hugo Campos on NPR&#8217;s &#8220;On The Media&#8221;--e-Patient Dave</title>
		<description><![CDATA[Read to the end&#8230; Our man Hugo Campos (see Friday&#8217;s post) is becoming a media star! TEDx, then MIT Technology Review, now NPR&#8217;s &#8221;On The Media&#8221;! From SPM co-founder Joe Graedon, of People&#8217;s Pharmacy, on the SPM listserv &#8211; see also the items below &#8230; &#8212;&#8212;&#8212;- Forwarded message &#8212;&#8212;&#8212;- From: Joe Graedon Date: Sun, Jan 22, 2012 at 5:01 [...]]]></description>
		<link>http://e-patients.net/archives/2012/01/hugo-campos-on-on-the-media-listen.html</link>
			</item>
	<item>
		<title>Hugo Campos at TEDx Cambridge: &#8220;Gimme My Damn Data,&#8221; Defibrillator Edition--e-Patient Dave</title>
		<description><![CDATA[We often say here &#8220;Gimme my damn data,&#8221; referring to our sentiment that data about our health is our data, about us, created for our well-being. And as the saying goes, &#8220;Nothing about me without me.&#8221; And where, we might ask, is that more vital than in the heart? SPM member Hugo Campos (Twitter @HugoOC) [...]]]></description>
		<link>http://e-patients.net/archives/2012/01/hugo-campos-at-tedx-cambridge-gimme-my-damn-data-defibrillator-edition.html</link>
			</item>
	<item>
		<title>Scrubs N Suits posts a good intro to SPM and e-patients--e-Patient Dave</title>
		<description><![CDATA[Thanks to Ellen Khalifa at Scrubs and Suits for a nice introduction to SPM, &#8220;A Chance to Get behind the Wheel: the Society for Participatory Medicine.&#8221; http://bit.ly/wFd9Ep &#8220;For decades baby boomers have been associated with movements advocating equality, cooperatives and shared experiences. But far from being some relic of the 1960’s, activist attitudes continue to [...]]]></description>
		<link>http://e-patients.net/archives/2012/01/scrubs-n-suits-posts-a-good-intro-to-spm-and-e-patients.html</link>
			</item>
	<item>
		<title>The Rise of the e-Patient--Susannah Fox</title>
		<description><![CDATA[Lee Rainie, director of the Pew Internet Project,  presented this wonderful overview of the Project&#8217;s health findings at Providence St. Joseph Medical Center in Burbank, CA, on January 12. The Rise of the e-Patient View more presentations from Pew Research Center&#8217;s Internet &#38; American Life Project Another summary of the Project&#8217;s health research is the [...]]]></description>
		<link>http://e-patients.net/archives/2012/01/the-rise-of-the-e-patient.html</link>
			</item>
	<item>
		<title>e-Patient hits the mass media: WBZ Radio and Angie&#8217;s List magazine--e-Patient Dave</title>
		<description><![CDATA[It&#8217;s one thing when we &#8220;talk amongst ourselves&#8221; in our own circles; it&#8217;s a whole different thing when the message starts popping up in *mass media*, where it reaches people who had no idea. So it&#8217;s big news that we&#8217;ve had TWO mass-media developments this week with almost identical titles: Fabulous article in the January [...]]]></description>
		<link>http://e-patients.net/archives/2012/01/nancy-finns-book-on-wbz-radio-and-angies-list-article-empowered.html</link>
			</item>
	<item>
		<title>Peter Elias: Empowerment and collaboration--Kathleen O'Malley</title>
		<description><![CDATA[Guest blogger Peter Elias, MD, a family physician, raises some interesting questions about the nature of patient empowerment and explores its implications regarding patient-physician collaboration. This piece originally appeared on the author&#8217;s blog, PeterEliasMD (personal observations and perspectives. I was struck last week by a remark in a discussion of patient-centric care: “&#8230;patient empowerment is [...]]]></description>
		<link>http://e-patients.net/archives/2012/01/peter-elias-empowerment-and-collaboration.html</link>
			</item>
	<item>
		<title>OpenNotes helps me prep for a visit--e-Patient Dave</title>
		<description><![CDATA[My annual physical is this Friday.  Since my doctor and I were among the guinea pigs participants in the OpenNotes project, I just got this reminder email: Message Date/Time: 1/17/2012 10:00:06 AM Read Date/Time: 1/18/2012 7:19:08 AM From: OpenNotes, Study To: deBronkart, Richard Davies Cc: Subject: Reminder: Review your doctor&#8217;s notes before your next visit! Dear Patient, You have a [...]]]></description>
		<link>http://e-patients.net/archives/2012/01/opennotes-helps-me-prep-for-a-visit.html</link>
			</item>
	<item>
		<title>MIT Media Lab&#8217;s Health &#038; Wellness 2012: ten day innovation fest, six us-centered projects--e-Patient Dave</title>
		<description><![CDATA[Updated 9:38pm ET &#8211; fixed many broken links :-/ I&#8217;m spending today (ONLY today, unfortunately) at the MIT Media Lab&#8217;s third annual Health &#38; Wellness Innovation event.  It&#8217;s a two week competition &#8211; six teams pursuing some terrific ideas for the most patient-friendly health innovations I&#8217;ve ever heard of. Or close to it. I&#8217;ll write [...]]]></description>
		<link>http://e-patients.net/archives/2012/01/mit-media-labs-health-wellness-2012-ten-day-innovation-fest-six-us-centered-projects.html</link>
			</item>
	<item>
		<title>Pauline Chen: Getting Patients to Take Charge of Their Health--e-Patient Dave</title>
		<description><![CDATA[Quick note as I run to the airport - Last May we reported on a study in process at Emory University about whether a &#8220;safety-net&#8221; (poor) population would engage with a personal health record. The preliminary results in that poster showed that what predicted patient performance was not how poor they were, nor how bad [...]]]></description>
		<link>http://e-patients.net/archives/2012/01/pauline-chen-getting-patients-to-take-charge-of-their-health.html</link>
			</item>
</channel>
</rss>

